Pancreatic Cancer Group: Introduce yourself and connect with others

@katiekos I think that you'll always find that second opinions are recommended when it comes to pancan. Pancan is a challenge and it takes knowledgeable, talented specialists to help you with proper guidance. If you are already using Mayo, great but contacting pancan.org or another National Cancer Center of excellence might identify additional options or confirm your current course of action. Good luck and bless you and your husband.

Hi. My husband was diagnosed with pancreatic cancer in March. he started Folfirinox April 1st. Initial thought was this treatment for 6 months with hope for surgery.... This week the CT showed no change in tumour size, CA 19 rising and a "sub centimeter low density area" in the liver. Plan now is Gemcitabine/abraxane and repeat CT in 2 months. He is 59yo and otherwise in good health. He did develop diabetes during this period and uses insulin when needed. I would really like a second opinion but unsure if it would be helpful... any thoughts or advice would be appreciated.

I did have a biopsy but haven't gotten to surgery yet. Hopefully August. I went through genetic testing with no genetic predisposition found. None of my doctors have mentioned KRAS, so I am not familiar with that. So far, thank the Lord, my tumor has responded to treatment.

The question was for becklynne1960

did you have the mass removed or biopsied? If so what was your genetic results or the genome found? Most are KRAS but there are various mutations of that. Some are much more responsive to treatment than others. Ask your physician if he knows please. Quite helpful information.

I have had 8 chemo treatments and now doing 6 weeks of radiation and hopefully surgery around August. I haven't really had terrible side effects from chemo or radiation. Some nausea but mostly just exhaustion. I pray that your numbers continue to improve.

22 rounds of chemo over the past year. Just dropped oxaliplatin. Panc tumor reduced greatly and liver mets have reduced greatly in size and number. I have tolerated chemo very well.

Wow, that is awesome. Have you been through treatments and surgery?

My level started at 340,000 in May 2021. May 2022 is at 40.

I was on a clinical trial that caused some intestinal issues and Creon was not really helping. I use Galvescon which does help immediate issues. A friend did research with drugs for Melanoma and they found that increasing glycine in the diet helped with treatment and inflammatory issues. I now make my own bone broth and drink every day and use in cooking. It seems to help me and besides it is soothing. You can also buy bone broth, chicken or beef.