Pancreatic Cancer Group: Introduce yourself and connect with others

Terry, to request a second opinion start by filling out the online form here: http://mayocl.in/1mtmR63

Once you fill out the form, a coordinator will contact you by phone to discuss your situation and ensure you get a second opinion with the right team.

Gas can result from insufficient pancreatic enzymes. There is a medication called Creon that is prescribed to help with this.

I find that with each day removed from the treatment, my digestive system improves, but I take it slow, eating small portions throughout the day, and also 2 bottles of Boost between meals for protein and weight gain. Folferinox is very strong stuff, and it takes a while to build back strength to tolerate the next cycle. My oncologist gave me an extra week to recover in this cycle to make sure I am ok for the next round. I hope your dad feels better.

thank you Colleen, I can not find a second opinion on the Mayo clinic web site. only free phone consultations. MD Anderson does a second opinion for $700. and we might do that. They look at all the medical records and will talk to our doctor about treatments. Dos that sound right?? I don't mind paying just want to know if that is what you were thinking. Any other medical second opinions will be welcome. Thank you for you wonderful help!!

@lovingwifeterry, I add my welcome and would underline the caring response you got from @mayoconnectuser1. Have you considered getting a second opinion at MD Anderson or Mayo Clinic?

I'm hoping by finding this website it will help me to learn more about the cyst I have on my pancreas and liver. Any info would be much appreciated.

Hello, I am the wife of Bob, my husband of 45 years. He was first diagnosed April 2022 with (very early) bile duct cancer, later scans showed (a very small mass on the pancreatic head.) . no found spreading and was on the road to a Whipple procedure after 4 rounds of chemo on his way to a potential cure.. At surgery they found more cancer that had spread into the belly (little seeds) , They now feel that this is pancreatic stage 4 cancer. They didn't do the whipple , but did repair a large hernia. The only treatment recommended for him going forward is more chemo and feel he has about one year to live. We are seeking more options and have found a study in Portland, Oregon using T cells and will be talking with them soon. we also read about an oral medication (Texas oncology) Lynparza PARP inhibitor that delays progression and improves survival rates. We are not getting much support from our local oncology department for new helpful treatments or clinical trials. I am reaching out to all of you if you have tried other helpful treatments to extend life. Thank you all so much for any information you can share with us. We Wish all for you the best.

lovingwifeterry,

I think what you're feeling is local medical teams providing the normal standards of care approach, combined with significant statistical knowledge concerning the daunting and horrible effects of pancreatic cancer.

I believe these medical professionals are as traumatized as you are by this disease.

Once metastasis occurs outside the pancreas and perhaps formal restaging to Stage IV occurs, they know there is little to be done except, in many cases, return to chemo to buy a little bit more time.

What does his CA 19-9 trend indicate?

Hello, I am the wife of Bob, my husband of 45 years. He was first diagnosed April 2022 with (very early) bile duct cancer, later scans showed (a very small mass on the pancreatic head.) . no found spreading and was on the road to a Whipple procedure after 4 rounds of chemo on his way to a potential cure.. At surgery they found more cancer that had spread into the belly (little seeds) , They now feel that this is pancreatic stage 4 cancer. They didn't do the whipple , but did repair a large hernia. The only treatment recommended for him going forward is more chemo and feel he has about one year to live. We are seeking more options and have found a study in Portland, Oregon using T cells and will be talking with them soon. we also read about an oral medication (Texas oncology) Lynparza PARP inhibitor that delays progression and improves survival rates. We are not getting much support from our local oncology department for new helpful treatments or clinical trials. I am reaching out to all of you if you have tried other helpful treatments to extend life. Thank you all so much for any information you can share with us. We Wish all for you the best.

Hello Everyone,
My first day here. As you know, it’s a crazy few weeks after being diagnosed (10/27/2022). First infusion yesterday and working on an at-home pump for a few days. Staying positive and trying to stay in the moment. Love to all. Below is a picture of me and my mother. She just turned 93 this week.