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Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
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HugInterested in more discussions like this? Go to the Pancreatic Cancer Support Group.
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May I ask what treatments /surgeries youve done?
Im stage 3 non resectable.dx April/22
Did gemzar / abraxane and mri proton radiation
Next scans in march
I have 2 stents bile and duodenal. Still have bathroom issues. Are you taking enzymes?
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1 ReactionYour story is an inspiration to me. Thank you for sharing.
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2 ReactionsI've been stable since 11/ 2022, I'm on no meds they stopped my lanotride shots now I see the Dr every 4 months,. MRIs, bloodwork and visit
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4 ReactionsHello, my name is Kathy, I was diagnosed with stage 4 pancreatic and liver tumors in 2020,.
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4 ReactionsMy platelets sunk regularly and sometimes delayed chemo. I came to know the symptoms but also remained quite active and never stopped working, walking, etc. just did stop cycling in case of a fall! My liver Mets shrunk together like a grape bunch so could be treated with precision after chemo (the y90). Pancreadectomy done laparoscopically in December. After 14 rounds of chemo with good results.
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2 ReactionsThey said it’s very difficult in the tail but also that they don’t even try to do that if it has already metastasized to the liver, no matter how much it shrinks.
I’m hoping that some of the targeted and immunotherapies come through and that he is a candidate.
They are thinking fulforinox next when this treatment stops working- he is heading into his 11th cycle but lots of platelet issues. Otherwise he feels very well most days - can walk miles and play golf, etc
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2 ReactionsI meant why they would not remove the primary tumor in the pancreas.
Mine shrunk incredibly, both liver and pancreas, during chemo. I did fulfurinox.
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1 ReactionWe were told that because it had metastasized to the liver - there are multiple spots- that surgery is not an option.
Yes, we are in the Ptecision Promise trial at SK. His liver tumor has shrunk by about 50 percent and the liver Mets are stable and also decreasing.
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3 ReactionsCan you explain why the surgery was considered not an option?
Also are you taking the trial treatment at SK?
What hospital are you at? We were told multiple times
that surgery is not an option once there is metastasis to the liver. My husband is also Stage 4 in tail. Mets to liver. Markers have dropped from about 5000 to under 200 and both tumor and liver Mets are shrinking on gemabraxane plus pemravulab in a trial.
At MSK in NYC
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3 Reactions