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Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
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Hello @mountainmama45 and welcome to Connect.
I am glad that you found this online support group as well! I'm sorry to hear of your daughter's diagnosis, but it sounds as if she has a treatment plan in place and that is a good thing.
Would you be comfortable sharing any more about how your daughter's diagnosis came about? Such as her symptoms, tests, etc. Do you know what type of chemo she will be having?
Blessings to your daughter and your whole family.
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1 ReactionMy daughter was diagnosed in May with Stage IV Pancreatic Cancer. She's had two months of tests and visits and her chemo starts July 17, 2020. Hello to all. I'm glad that we found this group.
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2 ReactionsHi there, my hubby was diagnosed at the end of October and treatment began in Dec. Just completed rad/onc and had a month off. Boy, did we need that. Believing in healing
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1 ReactionI had tests done this morning at Mayo - Rochester to see how things went after radiation. I met with my oncologist this afternoon to talk about the results. The blood tests showed that my kidney function was down to 15% (for me, that's pretty normal). The blood tests also showed that CA 19-9 has gone down. The PET scan showed that the tumors on my pancreas and the surrounding lymph nodes have grown in size. It is possible that this is a result of the radiation. At this time, the plan is to monitor things by doing CA 19-9 tests monthly. If it remains steady or continues to go down, I will wait 3 months before getting another scan at Mayo. If it starts to increase, I will have to go back to Mayo sooner. If future scans show no change in the size of the tumors or if the tumors shrink, I will receive no treatment. We will just continue to monitor things with quarterly PET scans. If the tumors start to grow, I will need to start chemo. Because of my kidney problems, if I receive chemo, I will also have to have dialysis after each chemo treatment.
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2 ReactionsHi Marvin,
I've been thinking about you. Have you completed your radiation treatments now? How are you feeling? I hope to hear from you with an update.
No they didn't told her yet
Has she been told that there is no treatment available for her?
Not yet she didn't start treatment doctors said it dosen't matter medecines in this case medecines
Hi @mimou, I'm glad that you found Mayo Clinic Connect, a place where you can meet other patients with pancreatic cancer and their family members. I moved your message to the Pancreatic Cancer group (https://connect.mayoclinic.org/group/pancreatic-cancer/) where you can see messages from other members like @dakotarunner @marvinjsturing @amomynous @chemobile @julie2018 @beckyvolk @cindee60 @dianamiracle @colorafo19 @cathyras @drewgrebe @alkat @mpatel23 @kjrita @fassbinder and connect with them.
Mimou, when was your mom diagnosed? Has she started treatment?
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