Pancreatic Cancer Group: Introduce yourself and connect with others

@marvinjsturing, I can imagine the scanxiety has returned. I will be thinking of you all the way and will be interested in the outcome, hoping for the best.

Have you got some pleasant things planned between now and Thursday to help distract you? Will you be driving or flying to Rochester?

Heading for Rochester on Thursday for a PET/MRI. Six years ago after my Whipple, I had a lot of scanxiety going back for the first scan. Things got better as each successive scan showed no cancer. Now, with the recurrence of my pancreatic cancer, I again have a lot of scanxiety. I just want to know what's happening. If the tumors are not growing, there will be no treatment - just monitoring with future scans. If the tumors are growing, I will need chemo - Irinotecan & 5-FU - along with dialysis.

Thanks!

@mscarano, all the best with your trip to Mayo Rochester and to flying during these times. @maryvallis512, also recently diagnosed with pancreatic cancer, was just at Mayo and may have some thoughts and tips to share.

In the meantime, here are a few discussions that you may appreciate as you prepare for the trip later this month:
- Tips: Traveling to Mayo to get medical care safely during COVID-19 https://connect.mayoclinic.org/discussion/your-tips-traveling-and-getting-medical-care-safely-during-covid-19/
- Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
- Packing for our trip to Mayo Clinic. What to bring? https://connect.mayoclinic.org/discussion/packing/
- Tips for your first Mayo Clinic visit and tests/appt schedules https://connect.mayoclinic.org/discussion/tips-for-first-dr-visit-and-testsappt-schedules/

You can see more in the Visiting Mayo Clinic group here: https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

Yes, will provide update once known.

Date correction. Monday 10/26 & Tuesday 10/27.

Hello @mscarano,

I appreciate your posting about your appointments at Mayo Clinic. Wishing you safe travels there and back home.

I would love to hear an update about your experience at Mayo and any information you learned from your appointments. Will you post again?

Have diagnostic tests scheduled in Rochester on Oct 27 and Dr. Truty appt on Oct 28 to determine best path forward. Coming from New Jersey so first time traveling out of state (flying) since COVID-19,

The Mayo Clinic in Jacksonville has two surgeons with arterial resection experience. One of them was scheduled to perform this on me in 2018 but my cancer miraculously broke up between the date of scheduling the surgery and actual surgery which was whipple procedure. I am now a 27 month survivor. Local oncologists and surgeons had told me to go home and get my affairs in order. Fortunately, I was able to locate the Mayo site explaining how the arterial resection is performed. I think they have at least one qualified surgeon at Rochester. I do not know about Phoenix.

Still waiting on a formal response. They want to do more diagnostics but have yet to discuss with any doctor. Will contact surgery unit next week as that is my point of contact.