Pancreatic Cancer Group: Introduce yourself and connect with others

Beckylynn, A basket of emotions is a good description. I can relate. I think about it as standing in the water at the shore of the Pacific Ocean. I’m the West Coast and the Pacific is a mighty ocean to me. I’m feeling ok watching the waves and then a big wave comes and knocks me down. I pick myself up and hope it will be ok and awhile later I get hit by another wave. The thing is that I don’t know when that big wave will come. I don’t know. It’s the I don’t know part that’s so scary to me.

I had a PET/MR scan a few weeks ago The time period leading up to the scan I felt just as you described. All over the place. I already knew my endometrial cancer had come back in a small spot. But what else would turn up on the scan? I feared the worst. But the scan showed nothing.

Will there be someone with you when you go for the scan? That helped me. Do you have someone to talk to about your fears? How are you taking care of you?

Understandable Becklynne. Sending you gentle hugs. Breathe and breathe again. I think @naturegirl5 and @gingerw might have some thoughts for you about acknowledging your feelings and how to manage the rollercoaster of emotions while you wait.

What things are you doing to help soothe yourself?

Thank you so much. I'm just a basket of emotions right now. I go between being scared to thinking maybe it's nothing. Virtually no symptoms but I also know that's not a definite either way. I appreciate your responses.

Rexan, you may be interested in this discussion about Creon and pancreatic enzyme replacement:

- Pancreatic enzyme replacement https://connect.mayoclinic.org/discussion/pancreatic-enzyme-replacement/

@becklynne1960, I'll be thinking of you on the 30th and be interested to hear what you learn. We're here if you need to talk over the weekend.

yes has anyone taken Creon

It was discovered from a CT scan to confirm a diverterlitus episode. I am scheduled for an endoscopic ultrasound with biopsy on 11/30. And yes, I was told it could be a cyst, but still worrisome. Thank you so much for your reply. I want to hear from others.

Hi BeckyLynne, welcome. It sounds like you've just received some worrisome test results but your doctors have not yet confirmed or ruled out pancreatic cancer. You are understandbly looking for hope that this isn't cancer. A mass on the pancreas can be non-cancerous and inflammation can be an indicator of cancer or inflammation.

Have further tests been ordered to find out more? How was the mass on your pancreas discovered?

I have just recently found out that I have a mass on my pancreas. My CA19-9 level is 1842. Has anyone had levels this high and it not be cancer.

Hi @rexsan20, I see you were asking members @cindysavant @macleish if they've been on Creon. Rexan, have you taken Creon? Did you have questions about it?

Has you been on Creon?