Pancreatic Cancer Group: Introduce yourself and connect with others

My husband was diagnosed with pancreatic cancer September 28, 2022. He has completed 10 chemo treatments and goal is to get to 12 and then 3 weeks of radiation. There is a chance that he will have to have surgery. The surgery is a very intense surgery which involves removing the entire stomach and pancreas because the tumor is wrapped. Does anyone in this group know of anyone that has had this surgery that we could talk to?

Hard to get answers like that. My doctor has a lot of compassion but also told me he would not sugar coat anything.

Diagnosed Feb 25 stage IV. With treatment 12-14 mos. Struggling with chemo trying find how much quality time I have without treatment. Can’t find the crystal ball
Bruce

mae,

A center of excellence should be able to quickly stage your disease, and will, likely prescribe neoadjuvant CHT/CRT, prior to surgery.

Your courage is a miracle. Thank you for sharing your very difficult story. I hope you will continue to feel normal and live each day well.

I am glad you are feeling well after all you have been through.
It would be even harder on you and your family if you were suffering. I never stop praying for more good time while they find more ways to combat this disease. The current reality is always in our minds. God Bless.

The doctor here says somewhere between 1 and 3. Listening to the other people here and my personal friend and other sources and factors, I decided to go to MD Anderson. I will ask them to operate on me, not just give a second opinion.

I’m feeling well, except for a little discomfort on my right side under my rib. I walk a mile every day that weather permits and take Creon before I eat a meal.
My surgeon said that my pancreatic cancer was carcinomatosis and that chemo would only give me about four more months ( he said I had about six to eight months). The PET scan and CT scans did not show the carcinomatosis. He found it when he went in to do the Whipple. He didn’t do the Whipple and left the tumor. He took six inches of my intestine and did a bypass around the pancreas so I would be able to digest food. Chemo made me sick and I don’t want to feel miserable if it’s not going to help me.
I feel sad when I think of what has happened to me and my family—it’s seems surreal that I feel normal, but knowing that my time is near. I am in God’s hands and pray for a miracle 🙏

I'm catching up on this discussion thread. I have to agree with @mamarina, the experiences you share with each other really is information that one just can't find anywhere else.

Here's a check-in for some members on chemo. I want to hear how you're doing:
@dragonfly1, how are you doing? Are you continuing with chemo?
@irvinejr, how is chemo going? What chemo regimen are you taking?
@mdbray, are you continuing with chemo or immunotherapy?
@mmcgmayo1, how are you doing with your treatment plan?

@maedanosetchan, if you would like to seek a second opinion at Mayo Clinic, here's how to get started: http://mayocl.in/1mtmR63

@richhsu, there isn't an app, per se. But you can bookmark the website https://connect.mayoclinic.org/ and see your notifications onsite in the upper right.