Are your pain symptoms worse in the morning?
Does anyone else have the pain symptoms be worse when you wake up.. it takes a good few hours to feel not so bad. ( I always feel bad but it’s worse in the morning?!
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Yes-always
I started telling myself that I’m just being lazy and to try harder and due to the fact that it’s physically impossible.. makes me more depressed because it’s another thing that shows me I’m broken
Sorry you are dealing with this. You are not being lazy.
Here are a few articles regarding symptoms with Covid, Long Covid, ME/CFS
Note: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a serious, chronic, and complex neuroimmune disease that affects multiple body systems, including the nervous, immune, and energy metabolism systems. It is characterized by profound fatigue that is not relieved by rest and is made significantly worse by physical, cognitive, or emotional exertion, a hallmark symptom known as post-exertional malaise (PEM).
#1 - 10/19/2023 Harlan Krumholz and Akiko Iwasaki (Rishi Shiah, Lilo Wu, and Adith Arun) present preliminary findings and answer questions from LISTEN participants.
https://medicine.yale.edu/ycci/listen-study/video/
The Yale LISTEN Study Town Hall: October 2023
The entire Town Hall is very interesting,
8:00 Difference in Percent of Participants Experiencing Symptom (Long Covid – PVS post-vaccination syndrome)
(See Image below #1)
#2- Patient-reported treatment outcomes in ME/CFS and long COVID
https://pubmed.ncbi.nlm.nih.gov/40627388/
(See image below #2, 3, 4)
#3- Long COVID Definition
A Chronic, Systemic Disease State with Profound Consequences
One_pager_Long_COVID_Definition.pdf
https://nap.nationalacademies.org/resource/27768/One_pager_Long_COVID_Definition.pdf
(Shared File below #5)
National Academies of Sciences, Engineering, and Medicine. 2024. A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequences.
A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequences (2024)
https://www.nationalacademies.org/read/27768/chapter/2
(See Image below #6)
Figure S-1 Definition figure: 2024 NASEM Long COVID definition.
Polybio
The consortium project explorer let's you click body area, then pick Project to view Full Study.
https://polybio.org/consortium-project-explorer/
(See Sample Image below #7)
Learned about "Long COVID Research Consortium" https://polybio.org/longcovid/
Long COVID not a mystery. New research is revealing key drivers of the condition, including evidence strongly suggesting that some patients with Long COVID do not fully clear the SARS-CoV-2 virus. Instead, the virus can persist in tissue where it may provoke the immune system. This could drive a wide range of downstream consequences such as blood clotting, neuroinflammation, and neuropathy. The persistence of SARS-CoV-2 in tissue is called a viral reservoir.
The Long COVID Research Consortium has established a comprehensive research program on Long COVID disease mechanisms, with a focus on viral reservoir. The program includes scientists and clinicians from institutions including Harvard Medical School, University of California San Francisco, the J. Craig Venter Institute, Johns Hopkins, University of Pennsylvania, the Icahn School of Medicine at Mount Sinai, Cardiff University and Yale University.
Best wishes,
🍀
One_pager_Long_COVID_Definition-1 (One_pager_Long_COVID_Definition-1.pdf)