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LynetteGable
@lynettegable

Posts: 79
Joined: Jul 14, 2011

Pain rehabilitation

Posted by @lynettegable, Dec 1, 2016

Anyone gone through pain rehabilitation Mayo has a 3 week program want to find others that have done pain rehabilitation

REPLY

Hello lynettgable. I have been searching for members who have gone through a pain rehabilitation program.

While I continue my search, would you mind sharing a bit more about your interest in the pain rehab program? Was the program recommended to you at your most recent visit to Mayo Clinic? What concerns do you have about the program that you are looking for other members to address?

In 2008 I had knee replacement go bad. It got infected and dr that did surgery wouldn’t take it out. Even after being on iv antibiotics still running temps 104 one time was admitted to hospital 105.3. He wouldn’t listen to Infectious disease dr. She said you need to go somewhere else. Went to Mayo they took out waited 3 months thought it was clean that got infected. Numerous surgies including muscle flap on knee to try keep it in. Finally took out and waited several months then put in rod to fuse leg. After 10 months that got infected so they had to take out. Surgeon had a really hard time getting it out and fractured my tronchanteric in hip. Very hard fracture to heal had plate wires put in but didnt heal and have broken all wires and is displaced fracture. I have hip dysplasia in that hip also. So….17 surgeries on leg, fused leg, hip fracture, dysplasia now back giving me problems I have nerve ablations done with all back stuff. My good knee now bad as I use it so much had scope done took out bone chips almost all meniscus. I mentioned to my hip/knee surgeon several times about pain rehabilitation he says wont help. Im always going to have pain. Need new hip, knee on good side and back surgery but they are scared to because of risk of infection. I know theyre frustrated. A month ago had stem cell and PRP done at Mayo out if pocket cost. My body doesnt like hardware. Had numerous infections including VRE and MRSA. Ive been on pain meds long time want to quit. Tried acupuncture and massage didnt help. Im always in pain even with meds. Was recently to Pain Clinic at Mayo they said not much they can do suggested Pain Rehabilitation Program.
Fears are program is 5 days 8 to 5 for 3 weeks. I cant hardly sit for more than hour, walking painful, I use walker for stability as dr says dont fall your fused leg will probably break in pieces. Im scared of the pain during the program and endurance. The form they have is your primary dr to complete with restrictions etc. I dont know if all the drs in the program work with your problems what they expect etc. Also should I contact my ortho drs before I enter program to see if there are physical things I shouldn’t do.
Sorry about the book but thought needed to give the big picture.
Thanks for your help. I dont know what to do and am anxious about program but I’m out of options.

@lynettegable

In 2008 I had knee replacement go bad. It got infected and dr that did surgery wouldn’t take it out. Even after being on iv antibiotics still running temps 104 one time was admitted to hospital 105.3. He wouldn’t listen to Infectious disease dr. She said you need to go somewhere else. Went to Mayo they took out waited 3 months thought it was clean that got infected. Numerous surgies including muscle flap on knee to try keep it in. Finally took out and waited several months then put in rod to fuse leg. After 10 months that got infected so they had to take out. Surgeon had a really hard time getting it out and fractured my tronchanteric in hip. Very hard fracture to heal had plate wires put in but didnt heal and have broken all wires and is displaced fracture. I have hip dysplasia in that hip also. So….17 surgeries on leg, fused leg, hip fracture, dysplasia now back giving me problems I have nerve ablations done with all back stuff. My good knee now bad as I use it so much had scope done took out bone chips almost all meniscus. I mentioned to my hip/knee surgeon several times about pain rehabilitation he says wont help. Im always going to have pain. Need new hip, knee on good side and back surgery but they are scared to because of risk of infection. I know theyre frustrated. A month ago had stem cell and PRP done at Mayo out if pocket cost. My body doesnt like hardware. Had numerous infections including VRE and MRSA. Ive been on pain meds long time want to quit. Tried acupuncture and massage didnt help. Im always in pain even with meds. Was recently to Pain Clinic at Mayo they said not much they can do suggested Pain Rehabilitation Program.
Fears are program is 5 days 8 to 5 for 3 weeks. I cant hardly sit for more than hour, walking painful, I use walker for stability as dr says dont fall your fused leg will probably break in pieces. Im scared of the pain during the program and endurance. The form they have is your primary dr to complete with restrictions etc. I dont know if all the drs in the program work with your problems what they expect etc. Also should I contact my ortho drs before I enter program to see if there are physical things I shouldn’t do.
Sorry about the book but thought needed to give the big picture.
Thanks for your help. I dont know what to do and am anxious about program but I’m out of options.

Jump to this post

Mayo saved my life but drs can only do so much

@lynettegable

In 2008 I had knee replacement go bad. It got infected and dr that did surgery wouldn’t take it out. Even after being on iv antibiotics still running temps 104 one time was admitted to hospital 105.3. He wouldn’t listen to Infectious disease dr. She said you need to go somewhere else. Went to Mayo they took out waited 3 months thought it was clean that got infected. Numerous surgies including muscle flap on knee to try keep it in. Finally took out and waited several months then put in rod to fuse leg. After 10 months that got infected so they had to take out. Surgeon had a really hard time getting it out and fractured my tronchanteric in hip. Very hard fracture to heal had plate wires put in but didnt heal and have broken all wires and is displaced fracture. I have hip dysplasia in that hip also. So….17 surgeries on leg, fused leg, hip fracture, dysplasia now back giving me problems I have nerve ablations done with all back stuff. My good knee now bad as I use it so much had scope done took out bone chips almost all meniscus. I mentioned to my hip/knee surgeon several times about pain rehabilitation he says wont help. Im always going to have pain. Need new hip, knee on good side and back surgery but they are scared to because of risk of infection. I know theyre frustrated. A month ago had stem cell and PRP done at Mayo out if pocket cost. My body doesnt like hardware. Had numerous infections including VRE and MRSA. Ive been on pain meds long time want to quit. Tried acupuncture and massage didnt help. Im always in pain even with meds. Was recently to Pain Clinic at Mayo they said not much they can do suggested Pain Rehabilitation Program.
Fears are program is 5 days 8 to 5 for 3 weeks. I cant hardly sit for more than hour, walking painful, I use walker for stability as dr says dont fall your fused leg will probably break in pieces. Im scared of the pain during the program and endurance. The form they have is your primary dr to complete with restrictions etc. I dont know if all the drs in the program work with your problems what they expect etc. Also should I contact my ortho drs before I enter program to see if there are physical things I shouldn’t do.
Sorry about the book but thought needed to give the big picture.
Thanks for your help. I dont know what to do and am anxious about program but I’m out of options.

Jump to this post

No need to apologize about thoroughly explaining your situation, that is what this community is for. I see that you have been active in many different discussions which is great to see.

I will try to address your main question by introducing you to @dawn_giacabazi. She has gone through the Mayo Clinic pain rehabilitation program and may be able to offer you some insight on what to expect.

I echo Justin, no need to apologize!!
My experience was amazing and trust me when I say, you will learn many life skills and other techniques to help manage your pain. No need to worry about sitting in one spot for very long because your day is filled with many appointments. Here is a link that will help explain.
http://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

Goals
The primary goal of the Pain Rehabilitation Center is to restore functioning
and improve quality of life for persons suffering with chronic pain. The
program emphasizes the discontinuation of opioid medication for the
treatment of chronic non-cancer pain and the return to a fulfilling lifestyle.
Other important goals include:
• Return to regular daily activities
• Increase physical strength, stamina and flexibility
• Reduce use of pain medications
• Minimize pain behaviors
• Learn stress management techniques
• Return to gainful employment
• Resume leisure and recreational activities
• Improve interpersonal relationships
• Reduce reliance on health-care professionals, with improved ability to self-
manage chronic pain

I pray you find relief soon.
Dawn

@lynettegable

In 2008 I had knee replacement go bad. It got infected and dr that did surgery wouldn’t take it out. Even after being on iv antibiotics still running temps 104 one time was admitted to hospital 105.3. He wouldn’t listen to Infectious disease dr. She said you need to go somewhere else. Went to Mayo they took out waited 3 months thought it was clean that got infected. Numerous surgies including muscle flap on knee to try keep it in. Finally took out and waited several months then put in rod to fuse leg. After 10 months that got infected so they had to take out. Surgeon had a really hard time getting it out and fractured my tronchanteric in hip. Very hard fracture to heal had plate wires put in but didnt heal and have broken all wires and is displaced fracture. I have hip dysplasia in that hip also. So….17 surgeries on leg, fused leg, hip fracture, dysplasia now back giving me problems I have nerve ablations done with all back stuff. My good knee now bad as I use it so much had scope done took out bone chips almost all meniscus. I mentioned to my hip/knee surgeon several times about pain rehabilitation he says wont help. Im always going to have pain. Need new hip, knee on good side and back surgery but they are scared to because of risk of infection. I know theyre frustrated. A month ago had stem cell and PRP done at Mayo out if pocket cost. My body doesnt like hardware. Had numerous infections including VRE and MRSA. Ive been on pain meds long time want to quit. Tried acupuncture and massage didnt help. Im always in pain even with meds. Was recently to Pain Clinic at Mayo they said not much they can do suggested Pain Rehabilitation Program.
Fears are program is 5 days 8 to 5 for 3 weeks. I cant hardly sit for more than hour, walking painful, I use walker for stability as dr says dont fall your fused leg will probably break in pieces. Im scared of the pain during the program and endurance. The form they have is your primary dr to complete with restrictions etc. I dont know if all the drs in the program work with your problems what they expect etc. Also should I contact my ortho drs before I enter program to see if there are physical things I shouldn’t do.
Sorry about the book but thought needed to give the big picture.
Thanks for your help. I dont know what to do and am anxious about program but I’m out of options.

Jump to this post

Thank you so much! It helps so much to find out from others their experiences etc. I want so much to go and hearing from others lessons the anxiety of the unknown

@dawn_giacabazi

I echo Justin, no need to apologize!!
My experience was amazing and trust me when I say, you will learn many life skills and other techniques to help manage your pain. No need to worry about sitting in one spot for very long because your day is filled with many appointments. Here is a link that will help explain.
http://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

Goals
The primary goal of the Pain Rehabilitation Center is to restore functioning
and improve quality of life for persons suffering with chronic pain. The
program emphasizes the discontinuation of opioid medication for the
treatment of chronic non-cancer pain and the return to a fulfilling lifestyle.
Other important goals include:
• Return to regular daily activities
• Increase physical strength, stamina and flexibility
• Reduce use of pain medications
• Minimize pain behaviors
• Learn stress management techniques
• Return to gainful employment
• Resume leisure and recreational activities
• Improve interpersonal relationships
• Reduce reliance on health-care professionals, with improved ability to self-
manage chronic pain

I pray you find relief soon.
Dawn

Jump to this post

Thank you so much for the information. How long ago did you go. May i ask what the source of your pain is?

I am in chronic severe pain. I have to look into this. I have back pain and fine fiber neuropathy that extends to my knees and hands from flagyl.

@dawn_giacabazi

I echo Justin, no need to apologize!!
My experience was amazing and trust me when I say, you will learn many life skills and other techniques to help manage your pain. No need to worry about sitting in one spot for very long because your day is filled with many appointments. Here is a link that will help explain.
http://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

Goals
The primary goal of the Pain Rehabilitation Center is to restore functioning
and improve quality of life for persons suffering with chronic pain. The
program emphasizes the discontinuation of opioid medication for the
treatment of chronic non-cancer pain and the return to a fulfilling lifestyle.
Other important goals include:
• Return to regular daily activities
• Increase physical strength, stamina and flexibility
• Reduce use of pain medications
• Minimize pain behaviors
• Learn stress management techniques
• Return to gainful employment
• Resume leisure and recreational activities
• Improve interpersonal relationships
• Reduce reliance on health-care professionals, with improved ability to self-
manage chronic pain

I pray you find relief soon.
Dawn

Jump to this post

2003
1999 I was in a car accident that resulted in post concussion syndrome, severe daily migraine headaches, broken collar bone, directions to the start of manubrium joint resulting in over 100 bone fragments in my breasts and chest was, seizures, broken foot, soft tissue damage over 75° of my body. Chronic pneumonia from shallow breathing secondary to the sternal pain. Every rise and fall of my chest would splinter or break off more bone from the sternal joint. Or pinch nerbes. For 3 years later still no healing and constant pain. The docs said sternal fractures “ALWAYS HEAL”. Trust me NO they do not!!!

Went through the pain rehab clinic, after 3 years of trying EVERY TREATMENT IMAGINABLE, that’s when we discovered the answer to the healing process. I learned coping skills and techniques. Alot of education, We did physical and occupational therapy. I had therapy multiple times before but the program is way different than your typical therapy any where else.

We ended up removing the sternal manubrium joint along with part of the sternum resulting in the 2,3,4th ribs are floating. I take NO pain medication. No headaches

It will change your life!!!
Dawn

@shirleyfoggepiazza
Chronic pain, is just horrible. You will come out of the clinic as new energized you. I was so frustrated and discouraged going into it but I would not change a thing back then. I am sure it is nothing less than better now. I highly recommend when traditional therapies are unsuccessful.

Good luck
Dawn

@dawn_giacabazi

I echo Justin, no need to apologize!!
My experience was amazing and trust me when I say, you will learn many life skills and other techniques to help manage your pain. No need to worry about sitting in one spot for very long because your day is filled with many appointments. Here is a link that will help explain.
http://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

Goals
The primary goal of the Pain Rehabilitation Center is to restore functioning
and improve quality of life for persons suffering with chronic pain. The
program emphasizes the discontinuation of opioid medication for the
treatment of chronic non-cancer pain and the return to a fulfilling lifestyle.
Other important goals include:
• Return to regular daily activities
• Increase physical strength, stamina and flexibility
• Reduce use of pain medications
• Minimize pain behaviors
• Learn stress management techniques
• Return to gainful employment
• Resume leisure and recreational activities
• Improve interpersonal relationships
• Reduce reliance on health-care professionals, with improved ability to self-
manage chronic pain

I pray you find relief soon.
Dawn

Jump to this post

Thank you so much for sharing!

@dawn_giacabazi

@shirleyfoggepiazza
Chronic pain, is just horrible. You will come out of the clinic as new energized you. I was so frustrated and discouraged going into it but I would not change a thing back then. I am sure it is nothing less than better now. I highly recommend when traditional therapies are unsuccessful.

Good luck
Dawn

Jump to this post

Thank you

@JustinMcClanahan

Hello lynettgable. I have been searching for members who have gone through a pain rehabilitation program.

While I continue my search, would you mind sharing a bit more about your interest in the pain rehab program? Was the program recommended to you at your most recent visit to Mayo Clinic? What concerns do you have about the program that you are looking for other members to address?

Jump to this post

I went through Mayo’s Pain Mgmt. Clinic in May of 2015. I have mixed feelings about my experience. The program attempts to teach you how to “manage” your pain without opioids. It also shows you how to find alternate ways of doing things to minimize your pain. They were able to get me off Opioids the first week with minimal discomfort, which for others was traumatic. I have maintained an Opioid-free life since the class. Their approach proved to be too much to remember and maintain successfully. Although I do not take opioids for pain, I have found a lifesaving way to minimize my pain. About 2 months ago my doctor asked if I would consider Medical Marijuana as a treatment for my pain as it is available in Minnesota since August. I agreed and and after a brief visit with a state-approved MD who referred me to a state approved pharmacy to decide what form and dose would be best for me. It was advised I take a 50/50 mixture of THC and HBD orally twice daily and a 100% THC SL spray for breakthrough pain which I rarely need. I have seen MANY posts regarding their “experiences” with otc or mail order forms of low quality marijuana and have this advice…….if you haven’t tried the real stuff as directed, don’t knock it. No, it may not perform as satisfactorily for everyone, but that does not mean it is a bad thing.
As for cost…..in Minnesota you are to pay the doctor $250 in cash or debit card as well as another $250 for the pharmacy PLUS, for me, for both solutions I pay $250/month. the 50/50 solution alone costs $180 per month. As a deal breaker for me, I cut back on the Lyrica I take which for me was $650/month so I am actually saving money.

@JustinMcClanahan

Hello lynettgable. I have been searching for members who have gone through a pain rehabilitation program.

While I continue my search, would you mind sharing a bit more about your interest in the pain rehab program? Was the program recommended to you at your most recent visit to Mayo Clinic? What concerns do you have about the program that you are looking for other members to address?

Jump to this post

I live in Iowa so the medical marijuanna is not an option. I am planning on going through the pain clinic. What do you think your outcome would be if you didnt have that option?

@JustinMcClanahan

Hello lynettgable. I have been searching for members who have gone through a pain rehabilitation program.

While I continue my search, would you mind sharing a bit more about your interest in the pain rehab program? Was the program recommended to you at your most recent visit to Mayo Clinic? What concerns do you have about the program that you are looking for other members to address?

Jump to this post

I did not for many years. I am comparing the medical marijuana to traditional prescribed medicines and the results last longer without Rx affects.

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