Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I’ve been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don’t have any issues with any of my lumbar disks. I’m in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

I also have burning buttock pain. I used Topamax for a few years then it quit working. I had been to the point where the burning pain was so bad I was also crying and pacing the floor. Now I take Gabepentin. It helps but doesn't totally get rid of the pain.

REPLY
@schony1087

I had back surgery and ever since I have had severe pain in my buttocks, to the point of crying. It is a burning pain and I too have trouble sitting. Any suggestions would be helpful

Jump to this post

@schony1087 Your back and hips are tied together by fascia, and when one gets overly tight it will affect the other. Surgery also creates fascial scar tissue that will tie into everything making it tighter. Myofascial release can help that with a certified MFR therapist. Here is some related information.

Here is a link that explains some of the issues that happen when the pelvis is tweaked and how physical therapy can help. https://trainingandrehabilitation.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/

Myofascial release might be able to help and it is mentioned in the article about lumbar plexus compression syndrome.

Here is our discussion on MFR.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

REPLY

I have pain in mt glutes and its beem going on for ten years. Drs. blame fibromyalgia, arthritis, and bursitis.

REPLY

I am also suffering with pain 24/7 due to Bursitis. Have you tried Cortisone Shots ? They do not work for me but I have a friend they do work for. She has been suffering for a year and got a shot two works ago, and says she finally got her life back.

REPLY

@ailean55 I have all those indications on my MRI’s including lower lumbar DDD, hip arthritis, torn labrum cartilage on both sides , but not fibromyalgia. However, I found I was able to get rid of almost all my pain with stretching, exercise and the right supplements including serrapeptidase and nattokinase enzymes. Some hemp seed oil (I. e. Healthy fats) cut pain and I also take some resveratrol / quercetin / turmeric, a small amount of rutin & multivitamins extra vitamin c to the maximum recommended level and some extra magnesium. Be sure to check blood pressure as some supplements can make it go up or down and don’t use the enzymes if you are already on anticoagulants or have a bleeding disorder. I have several posts where I described specific exercises I do either in this thread or in the pudendal neuralgia thread. The enzymes were a game changer for me and my muscles started feeling less ropey with less scar tissue after 2-3 months. Then you can cut back on the enzymes (but to work properly I do believe you need to stretch and exercise (or walk)) some for best results. At least, that was my experience. Now I have much less sitting pain and much less stiffness from myofascial pain. PM me if you want a detailed protocol beyond the list I gave you.

REPLY
@richman54660

@ailean55 I have all those indications on my MRI’s including lower lumbar DDD, hip arthritis, torn labrum cartilage on both sides , but not fibromyalgia. However, I found I was able to get rid of almost all my pain with stretching, exercise and the right supplements including serrapeptidase and nattokinase enzymes. Some hemp seed oil (I. e. Healthy fats) cut pain and I also take some resveratrol / quercetin / turmeric, a small amount of rutin & multivitamins extra vitamin c to the maximum recommended level and some extra magnesium. Be sure to check blood pressure as some supplements can make it go up or down and don’t use the enzymes if you are already on anticoagulants or have a bleeding disorder. I have several posts where I described specific exercises I do either in this thread or in the pudendal neuralgia thread. The enzymes were a game changer for me and my muscles started feeling less ropey with less scar tissue after 2-3 months. Then you can cut back on the enzymes (but to work properly I do believe you need to stretch and exercise (or walk)) some for best results. At least, that was my experience. Now I have much less sitting pain and much less stiffness from myofascial pain. PM me if you want a detailed protocol beyond the list I gave you.

Jump to this post

I will give the recommendations a try. Thanks.

REPLY

I've not been able to sit long at all, just to go to the Dr. I have M.S. and Fibromyalgia. I remember when it first happened I was pregnant. Now the bottom of my spine and across the top of my buttocks swells in constant pain. Sciatica both hips down both legs. I am only 56 and no way could I take a trip. It's screaming pain that never goes away, only relief is laying down. Sitting seems to squeeze the nerves and because of the pain my blood pressure goes really high. Hope I helped some. HUGS soft ones💜

REPLY

Sounds like pudendal nerve entrapment! I’ve been diagnosed with that recently and it is terrible

REPLY
@vklittle61

I’ve had a pelvic mri

Jump to this post

I slipped on wet floor last feb and landed in my coccyx and have had pain sitting ever since. Only relief I get is from a chiro who specializes internal massages to release tension and ease the tailbone back in place. Takes 2 min. And brings instant release sometimes for months. Then I go back. He sees 6 or 7 people every day. Some drive hundreds of miles. I have heard pelvic floor physics also do it also vaginally. He does it annually

REPLY

Has anyone tried acupuncture? I've been going to a physical therapist who specializes in pelvic floor therapy for about two months but have not made too much progress with the sit bone pain. Mine is very localized and I haven't had an x-ray or MRI but my therapist believes it's just muscle "knots" rather than bursitis, which I initially through it was. I tried a massage pillow and that made it worse, so I hesitate to use any type of electronic stimulation. I appreciate any feedback, thanks!

REPLY
@lgerkin

Has anyone tried acupuncture? I've been going to a physical therapist who specializes in pelvic floor therapy for about two months but have not made too much progress with the sit bone pain. Mine is very localized and I haven't had an x-ray or MRI but my therapist believes it's just muscle "knots" rather than bursitis, which I initially through it was. I tried a massage pillow and that made it worse, so I hesitate to use any type of electronic stimulation. I appreciate any feedback, thanks!

Jump to this post

Sounds like you have pudendal nerve entrapment like me

REPLY
@vklittle61

Sounds like you have pudendal nerve entrapment like me

Jump to this post

Thanks. Do you know what the recommended treatment is for that?

REPLY

This sounds like my diagnosis of pudendal neuropathy. It’s horrible! My neurologist finally gave me a diagnosis

REPLY
@lgerkin

Thanks. Do you know what the recommended treatment is for that?

Jump to this post

@lgerkin @vklittle61 I don't have pundental nerve entrapment, but I have read that Myofascial release physical therapy can help. We have a discussion on MFR, and there is a provider finder on the MFR website. Here is the link to the discussion. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

REPLY

I will check it out, thanks! My physical therapist specializes in pelvic floor therapy and has been using MFR. I thought I had bursitis, but she believes it's a myofascial restriction. I think we may be making progress but it's really slow and I'm still feeling that dull ache when I sit down. It's very helpful to see what others have tried and what else might work.

REPLY
Please login or register to post a reply.