Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I’ve been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don’t have any issues with any of my lumbar disks. I’m in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

For what it’s worth I had the same pain for years. Saw all types of doctors . Finally had an ablation of the orbituator nerve which got me out of this pain .

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@jenniferhunter

@shaytsadik @qball2019 Chris mentioned myofascial release therapy, and I would also recommend it and it has helped me a lot. It is physical therapy and can help a lot of conditions where nerves are compressed by tight tissues, and it can help pundental nerve issues. We have a discussion with a lot of information and links to videos with John Barnes where he explains the process. The pelvis can twist out of shape and cause nerve compression and pain to the legs. Here are 2 links to explore. The other link is displayed below the video.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Lumbo Sacral Decompression video with John Barnes

https://trainingandrehabilitation.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/

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It’s helped me as well. Great results so far with a great qualified and certified therapist.

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@ecalderman I’m pretty sure I had ischeal bursitis, too. Try the enzymes serrapeptidase (biomedix brand buy the 260,000 u bottle), nattokinase (2000 U doctors best brand) and I just started working lumbrokinase (doctors best brand). All are available on Amazon. Try with higher levels of vitamin c. I think fibrin (which normally helps blood clot) gets bound to nerves, tissues, bursa and causes stiffness, pain and inflammation (that’s speculation- but, could be right). Fibrin has been implicated in several autoimmune diseases. It took a few months but I had a post above where I mentioned these enzymes. The use of these enzymes and proper stretching and exercise cured me- and I believe it is curing the root problem which stops the pain and the inflammation- not simply dulling the pain with meds or surgery. At least I feel it is working for me. If you don’t have a clotting disorder and you can tolerate the enzymes (take on an empty stomach) they might help. Good luck.

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i had terrible pain in my sit bones for a few years and arranged 8"x 15" pillows so that i could sit on my thighs and not my sit bones. just recently, my doctor sent me to his chiropractor for back pain. the chiropractor said (as a dr from mayos had said casually a few years earlier) that i had a twisted sacroiliac. with his treatments, the sciatic nerve actually moved around to the side and off my sit bones. it didn't cure the pain, but moving it off my sit bones has made a huge difference. i can sit and read again

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@amomynous

i had terrible pain in my sit bones for a few years and arranged 8"x 15" pillows so that i could sit on my thighs and not my sit bones. just recently, my doctor sent me to his chiropractor for back pain. the chiropractor said (as a dr from mayos had said casually a few years earlier) that i had a twisted sacroiliac. with his treatments, the sciatic nerve actually moved around to the side and off my sit bones. it didn't cure the pain, but moving it off my sit bones has made a huge difference. i can sit and read again

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May I ask which treatments your doctor have done for moving the sciatic nerve?

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@amomynous

i had terrible pain in my sit bones for a few years and arranged 8"x 15" pillows so that i could sit on my thighs and not my sit bones. just recently, my doctor sent me to his chiropractor for back pain. the chiropractor said (as a dr from mayos had said casually a few years earlier) that i had a twisted sacroiliac. with his treatments, the sciatic nerve actually moved around to the side and off my sit bones. it didn't cure the pain, but moving it off my sit bones has made a huge difference. i can sit and read again

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@amomynous @shaytsadik Here is a link that explains some of the issues that happen when the pelvis is tweaked and how physical therapy can help. https://trainingandrehabilitation.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/

Myofascial release might be able to help and it is mentioned in the article about lumbar plexus compression syndrome.

Here is our discussion on MFR.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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it is a chiropractic machine. you stand there and they tilt it and tap you on the back. it seems as though nothing is happening, but the results are amazing. the purpose was to untwist my sacroiliac, and the moving of the sciatic nerve was a side effect

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@amomynous

it is a chiropractic machine. you stand there and they tilt it and tap you on the back. it seems as though nothing is happening, but the results are amazing. the purpose was to untwist my sacroiliac, and the moving of the sciatic nerve was a side effect

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@amomynous chiropractic adjustments didn’t help my sitting pain. The other things I mentioned in this post and pudendal nerve entrapment thread did help me. I think it depends on the nature of someone’s issue.

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i had it for a few years. relief came unexpectrdly. my dr made me go to a chiropractor, who decided that my problem was a twisted sacroiliac. when he treated ths, my sciatic nerve moved off my sit bones and around to the sides. still have sciatica, but a great relief to have it off the sit bones

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@amomynous

it is a chiropractic machine. you stand there and they tilt it and tap you on the back. it seems as though nothing is happening, but the results are amazing. the purpose was to untwist my sacroiliac, and the moving of the sciatic nerve was a side effect

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@amomynous 30 years of SI joint pain relieved by chiro who untwists my sacrum. Takes 2-3 minutes! Sent to her by my surgeon. That's about once a month and as an auxiliary to SCS. Almost zero pain even early in the a.m.

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After reading several posts, I am here to say I have a similar yet so different type of problem. The similarities are that it started in my butt crack, however, it involves the surrounding skin and it's the skin that is so painful. It feels like the cheeks don't separate when I sit down and that I am actually sitting on the tissue ( folds) at the coccyx area. This leads to skin breakdowns and has bleed at times. I have tried using large bandaids to try and keep the crack open but that doesn't work. I have tried other things to try to open that area when I sit but nothing has worked.. The only thing that gives me any relief is sitting on a donut shaped pillow but that relief is short lived because it starts hurting my buttocks. I am having to sit on one cheek or lay on my side when in bed. I am hoping that I can find something that will help this but I am also very concerned that with age that area will produce a decubiti and will be very hard to heal. I am 71 years old now and still active but there will come a time when that will change. hopefully not for a long time but still I have to be realistic. Has anyone ever experienced anything like this and if so I am open for suggestions. thank you

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@jeanie26

After reading several posts, I am here to say I have a similar yet so different type of problem. The similarities are that it started in my butt crack, however, it involves the surrounding skin and it's the skin that is so painful. It feels like the cheeks don't separate when I sit down and that I am actually sitting on the tissue ( folds) at the coccyx area. This leads to skin breakdowns and has bleed at times. I have tried using large bandaids to try and keep the crack open but that doesn't work. I have tried other things to try to open that area when I sit but nothing has worked.. The only thing that gives me any relief is sitting on a donut shaped pillow but that relief is short lived because it starts hurting my buttocks. I am having to sit on one cheek or lay on my side when in bed. I am hoping that I can find something that will help this but I am also very concerned that with age that area will produce a decubiti and will be very hard to heal. I am 71 years old now and still active but there will come a time when that will change. hopefully not for a long time but still I have to be realistic. Has anyone ever experienced anything like this and if so I am open for suggestions. thank you

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@jeanie26 perhaps this may be a skin problem related to nerves? If so, Consider seeing a dermatologist. Extreme nerve irritation can cause skin changes and affect the amount of blood flow to an area (e.g. in CRPS; I’m not implying you have that but nerves do affect circulation). To that end, aerobic exercise may help nerves get better blood flow. I personally like the stair master but walking, treadmill, elliptical might be good. Dermatologists may have some skin care suggestions or products. Also, if you are concerned about something like Pilondial cysts (I wasn’t sure about the term you used) or such that can occur in that area it is possible to get on antibiotics like minocyclin long term – which could give you peace of mind. You’d need to speak with your doctor about that.

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@scruffy1

@amomynous 30 years of SI joint pain relieved by chiro who untwists my sacrum. Takes 2-3 minutes! Sent to her by my surgeon. That's about once a month and as an auxiliary to SCS. Almost zero pain even early in the a.m.

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Please tell me more as seven years of pain due to SI driving me nuts

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I had back surgery and ever since I have had severe pain in my buttocks, to the point of crying. It is a burning pain and I too have trouble sitting. Any suggestions would be helpful

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@schony1087 there is a long thread with many comments in this section and also in the "pudendal nerve entrapment" thread of chronic pain. There may be some suggestions there that will help you. Unfortunately, those looking for a quick fix via surgery generally are not pleased to find out that due to the highly vascular and innervated area, surgery is often not an option. In fact, you're indicating surgery may have caused an issue. However, the areas are soft tissue and stretching, exercise, the right meds and supplements for pain and the right type of body work (ultrasound / myofascial techniques, etc.) might help you out tremendously. I've made quite a few detailed posts myself. My pain has gone way down over time so it can get better. Please look over those two threads extensively.

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