I’m so sorry you’re experiencing this. Have you ever tried any meditative techniques? They se to be a way to control anxiety and I’ve hear people say it helps control their ectopics.
I can have anywhere from 4 to over 10,000 ectopics a day, mostly PVCs, but I sleep right through them.
I’m lucky. I sleep like a log - maybe it’s a combination of the increasing fatigue I feel, being a natural good sleeper, and the 10mg of amlodipine, 16mg candesartan, and 12.5mg of Carvedilol at night (on top of my morning meds) which just knocks me out!
I hope you can find a solution. Lacking sleep is not good for you. And the more you stress about ectopics, the worse they can become.
I’m so sorry you’re experiencing this. Have you ever tried any meditative techniques? They se to be a way to control anxiety and I’ve hear people say it helps control their ectopics.
I can have anywhere from 4 to over 10,000 ectopics a day, mostly PVCs, but I sleep right through them.
I’m lucky. I sleep like a log - maybe it’s a combination of the increasing fatigue I feel, being a natural good sleeper, and the 10mg of amlodipine, 16mg candesartan, and 12.5mg of Carvedilol at night (on top of my morning meds) which just knocks me out!
I hope you can find a solution. Lacking sleep is not good for you. And the more you stress about ectopics, the worse they can become.
What does your cardiologist say about it? There are meds that are supposed to minimize them. Good luck, I’ve had both too, and eventually they stopped bothering me. Best Wishes and prayers for improvement of them.
What does your cardiologist say about it? There are meds that are supposed to minimize them. Good luck, I’ve had both too, and eventually they stopped bothering me. Best Wishes and prayers for improvement of them.
I have a condition called progressive cardiac conduction disease. It’s a genetic defect of the sodium channels of my heart and to be honest, the PVCs and PACs don’t really concern them. I have other things going on too which worry them more such as my left bundle branch block and coronary artery spasms. I’ve also had non sustained ventricular tachycardia. The main focus at the moment is trying to prevent structural damage to my heart.
I posted in this group bout my condition with more detail if you’re interested. It’s kind of lonely as I don’t know anyone else with it to swap stories and talk to about it.
I have a condition called progressive cardiac conduction disease. It’s a genetic defect of the sodium channels of my heart and to be honest, the PVCs and PACs don’t really concern them. I have other things going on too which worry them more such as my left bundle branch block and coronary artery spasms. I’ve also had non sustained ventricular tachycardia. The main focus at the moment is trying to prevent structural damage to my heart.
I posted in this group bout my condition with more detail if you’re interested. It’s kind of lonely as I don’t know anyone else with it to swap stories and talk to about it.
I understand the lonely part. I have all the symptoms of a rare disease, not yet formally dxed yet. Cleveland Clinic is supposed to be #1 with heart problems. Have you tried to get in there for another opinion? Praying you will get some relief from the palpitations and solutions for the other issues. 🙏
I understand the lonely part. I have all the symptoms of a rare disease, not yet formally dxed yet. Cleveland Clinic is supposed to be #1 with heart problems. Have you tried to get in there for another opinion? Praying you will get some relief from the palpitations and solutions for the other issues. 🙏
Thank you for your kind thoughts. I’m not in the US and it’s not really a case of not having the expertise, but more that cardiac research around the world still has a long way to go.
Why do you believe your condition is rare? What have they said so far about what is happening with your heart?
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1 ReactionTry lying on your right side.
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2 ReactionsIf I lie on my right side I feel them more
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1 ReactionYour correct right side is better but I still notice them
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2 ReactionsI’m so sorry you’re experiencing this. Have you ever tried any meditative techniques? They se to be a way to control anxiety and I’ve hear people say it helps control their ectopics.
I can have anywhere from 4 to over 10,000 ectopics a day, mostly PVCs, but I sleep right through them.
I’m lucky. I sleep like a log - maybe it’s a combination of the increasing fatigue I feel, being a natural good sleeper, and the 10mg of amlodipine, 16mg candesartan, and 12.5mg of Carvedilol at night (on top of my morning meds) which just knocks me out!
I hope you can find a solution. Lacking sleep is not good for you. And the more you stress about ectopics, the worse they can become.
Thanks for your thoughts.
What does your cardiologist say about it? There are meds that are supposed to minimize them. Good luck, I’ve had both too, and eventually they stopped bothering me. Best Wishes and prayers for improvement of them.
I have a condition called progressive cardiac conduction disease. It’s a genetic defect of the sodium channels of my heart and to be honest, the PVCs and PACs don’t really concern them. I have other things going on too which worry them more such as my left bundle branch block and coronary artery spasms. I’ve also had non sustained ventricular tachycardia. The main focus at the moment is trying to prevent structural damage to my heart.
I posted in this group bout my condition with more detail if you’re interested. It’s kind of lonely as I don’t know anyone else with it to swap stories and talk to about it.
I understand the lonely part. I have all the symptoms of a rare disease, not yet formally dxed yet. Cleveland Clinic is supposed to be #1 with heart problems. Have you tried to get in there for another opinion? Praying you will get some relief from the palpitations and solutions for the other issues. 🙏
Thank you for your kind thoughts. I’m not in the US and it’s not really a case of not having the expertise, but more that cardiac research around the world still has a long way to go.
Why do you believe your condition is rare? What have they said so far about what is happening with your heart?