Pacemaker recipients: Looking for support from others

Totally agree!!!

14 months with Pacemaker. A group to support this segment would be a good addition.

For sure!!!!

Eunice18, I have also made such a request. I contacted Colleen to ask if this would be possible. There are many of us out there who have various cardiac issues but also have pacemakers or ICDs or CRTs. Some of the issues we experience with these devices are a topic all unto themselves. I think many people with pacemakers checkout the Mayo site but see nothing specifically for them in support group listing. So they move on. I have been chatting with others I know who have pacemakers and they do not see the point of joining since it appears there is nothing there for them. .
I think we have to build some momentum by sending in requests for the formation of such a support group. The more of us who ask for a support group dedicated to those of us with pacemakers, the more likely it will happen. The moderator(s) need to know that there is interest for a support group. And they will only know if we take the time to ask for one. Let's make it happen!

I put a request in the Feedback, but don’t know if that will work???

Agree!!!!! Any ideas to make that happen?

But first we need a dedicated and separate pacemaker support group category. This thread is incredibly long and involved. A more direct connection would be helpful. Your thoughts?

@balubeje
Concur,
Colleen can you set it up.

I had a ICD/Pacemaker inplanted in 2006 at Mayo Jacksonville. I have been through so much with it I could fill pages. My experience and it is both bad and good. It now spans almost 20 years and on my 3rd one. Bottom line, would I have it implanted if had to do all over, YES! I am only alive and writing this because I had it implanted.

I learned so much from Pace Clinic at Mayo, my Electrophysiolgist, cardiologists and my own research. I also go to the manufacturer of my ICD/pacemaker (Boston Scientific) which is also a great place for research and will also answer your questions about your specific product.

Where I used to worry about having it I now smile knowing I have it.

Great idea for pacemaker group!!!!

@gut Yikes. Sounds like a lot of medicine. Try various vagal maneuvers (can be found on the internet). I'm 81, male, with ocasional AFIB and tachycardia. I'm only taking 25mg of metoprolol daily, and have yet to have to take any more metoprolol as a "pill in the pocket" if an event occurs (HR over 120 bpm). Instead, the vagal manuever has worked for me. Good luck.