1. < Pacemaker & ICDs
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Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Pacemaker & ICDs Support Group.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

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All i know is levels. Having to do with meds. I will ask and post the correct answer.

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jimana | @jimana | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

@marke92 What specifically do you look for in the blood work?

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marke92 | @marke92 | Oct 6, 2016
In reply to @martishka "I see I have been tagged in these discussions. However, I don;t have a pacemaker, which..." + (show)
Profile picture for martishka @martishka

I see I have been tagged in these discussions. However, I don;t have a pacemaker, which was offered to me but I chose to go the ablation route for my A fib and svt (tachycardia) I do have a friend who had one put in when she was 30- she kept fainting. She's a black belt in karate- extremely fit and feels awesome. She is now 63 and has had 2 or 3 more put in over the years and no complaints. Hope that helps. Martishka

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Thats a great story. Thanks for sharing. I feel better about my pacemaker now. @martishka

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

I can say i feel good and i do not have any trouble getting things done.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

I was told the samething at first. I guess they install so nany pacemakers they have gotten it down to just routine. I would recommed you have bloid work done after 6 months. Then every six months there after. I do and the results have been good. With the mefs added to my life. I feel better on the safe side. @jimana

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jimana | @jimana | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

I feel an occasional flutter which I assume is a PVC or a PAC, but there don't seem to be nearly as many as before the pacer was implanted. BTW, I saw my cardiologist yesterday for the first time since the pacemaker was installed in April. His recommendation was that we not change anything and said he would like to see me in one year - I guess he must be happy, and if he's happy, I'm happy. He did say, however, that even though I have not had any A-fib post-pacemaker, I definitely will have at some time. I hope to prove him wrong.

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marke92 | @marke92 | Oct 6, 2016
In reply to @bibi12 "I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support..." + (show)
Profile picture for bibi12 @bibi12

I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support group would be wonderful

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I also excercise and light lifting. I was told to keep my pule around 120. Thought my treadmill wont puck up my pulse. So i was informed i hit 160 regularly. @billmichalski. I also have the 3 lead with difi. I worry abkut a false shock. Even though last visit the pulse limit was raised to 160 in the pacemaker.

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marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Do any of you feel like your heart flutters at times? I do.

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Profile picture for marke92
marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Ok i got this now.

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Profile picture for marke92
marke92 | @marke92 | Oct 6, 2016
In reply to @colleenyoung "That's a great place to start @balubeje. To tag a particular member, simple add their @username..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

Jump to this post

Trying to tag @balubeje so thats all this reply is for.

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