Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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The answer to my post about blood work. Blood trst give cardic emzyme levels. Once you have heart trouble and take meds. There is a risk of blood clots and kidney function. Cardiac emzymes tell if your heart is struggling or not. So monitoring this can let you know ahead of time if changes are present. PT. PTT This information was explained to me by a Phisician. That stressed you have to push for it. To keep cost down its often put off.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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I stricly followed the same directions. Hands not above head and the rest. I have had awesome results. Each test confirms all leads are still in and working. Im just curious if a person could actually feel a tug from the leads. I think i have. Its not a problem. Im just exploring all areas of this experience. I feel great all the tine and have been so Blessed. Thank You for the response.

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@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

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I too give thanks and Praise to our Almight Father. I do not worry because he is with me always. Thank You for giving God Praise. I am curious and enjoy reading others stories. Hearing what they feel and expierience. Its nice to have this site learn get others perspective.@balubeje Thank You all for welcoming me and for all the replies.

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@colleenyoung

That's a great place to start @balubeje. To tag a particular member, simple add their @username (including the @ symbol) in your message. Like I tagged you in this message.
@balubeje what internal sensations from your pacemaker unsettle you?

@ronbee @jimana @martishka @billmichalski How do you know when something is wrong with your pacemaker? What signs have you been told to watch for?

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I'm one of those who doesn't have high blood pressure I'm probably one who gives it-lol. So I can't speak to bp medications. I did get dizzy once in a while felt like my blood wasn't flowing all the way up to the top of my head was the analogy I shared with my PCP that got all this rolling in the first place. As for the big bump-I thank God often that was an option and I'm totally okay that I don't have a
defib but should that come to be I will says thanks to the Almighty that is also an option.

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@bibi12

I'm a new pacemaker recipient. I'm so new to heart disease and pacemaker surgery a support group would be wonderful

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I am just now seeing this post. I really don't want to say welcome aboard but welcome aboard. This is a good place to learn, share and if need be pray.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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I'm not sure I feel the tug on my heart muscle more so at the pacemaker insert site occasionally. When my pacemaker was placed my restrictions included not putting my arm up over my head and if I remember correctly I didn't sleep on my left side. I had weight restrictions and wasn't to lift my arm over my head. Those were 6 weeks post insertion. 3 months was no swimming. My biggest adjustment was the medication and they allow me to play with it. I think I am finally at a happy place with that. When I have to "report in" every three months I don't notice anything out of the norm during the reading event. When I have an event it feels like my heart beat is running over each other-don't know how else to describe that. Sometimes it is a short event and there have been times when it was out of sync for days but I had this action going on before the pacemaker and I think once the medication and I got into sync that has been less and less an event until we went through Wyoming recently and then I attributed that to the higher altitude. Hope this is helpful. I am 16 months post insertion.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Colleen for the most part. I feel like my pacemaker is set perfect. Life is Great. It is a forein object so feeling it move. Or shut a door on the car and it just nicks your pacemaker. Ok a couple times it got eacked pretty good. Its scary and it hurts. Another feeling ive noticed. At timrs its cold, real cold to touch. Believe me. You feel that cold inside at timrs. I know so of these are little things. They might help some one out there. There little things maybe just what i need to hear. Plus hopefully this will get people going and putting their thought down.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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With added speed up during excercise. Do you find yourself breathing harder or deeper. You may not get enough oxygen sometimes when you think your breathing was fine. Im just a patien so nothing scientific. Best wishes.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Yes i do @colleenyoung. During the data link on check ups. As the test is done It hurts and feels like a heart attack.i thought they were shocking me. Id anybody elsr out there sensitive to the leads during the circle over the pacemaker test. I kinda hope some of you do. That it is normal. Because im worried the left side was so damaged. Id why it hurts me.
Plrasr reply.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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@balubeje This maybe jusy me. Do you ever feel like the lrads from the pacemaker pull on yout heart muscle while in certain resting positions. If i lay on my left side. Sometimes ill dozr off. Upon waking my shoulder is up by my chin. I noticed post op it took a few days of healing before i was flexible and painless in this position. As i got more use to laying on my side. I noticed it seem to hurt my heart and even felt as if it was holding it back a little. I dont think itd at all a problem. Like you i curious what othets feel. I also willing to share.

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