Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@kanaazpereira

Hi @bonniecanby,

There are a few Connect members who may be able to provide some insight; please meet @martishka, @guardian, @bevmaier, @gonefishinmt.
Bonnie, could you give us a few more details? Do you have afib, even after the ablation was done?

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It's good to hear from you, @bevmaier, and really appreciate your input. I noticed from your past messages that you had some concerns about the recurrence of rheumatic fever; we'd love to know how you are doing now?

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Wish I could be helpful for you. I am coming on two years with a PM in June-bradycardia. At my last visit with the cardiac nurse in Jan. 2017 she could tell that I had two bouts of Afib several months apart and of course I couldn't remember any correlation so we are treating with baby aspirin daily. Fatigue comes and goes but I am keeping a closer eye on the lightheadedness. That drives me crazy.

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@kanaazpereira

Hi @bonniecanby,

There are a few Connect members who may be able to provide some insight; please meet @martishka, @guardian, @bevmaier, @gonefishinmt.
Bonnie, could you give us a few more details? Do you have afib, even after the ablation was done?

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I had the abilation dThey told me that the atrial's were still in a-fib vut the PM was keeping the ventrials beating at 70-80 bpm and regular,

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The PM is giving me a steady heart beat however they tell me here at mayo that the artrial parrt of my heart is still in a-fib.

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@kanaazpereira

Hi @bonniecanby,

There are a few Connect members who may be able to provide some insight; please meet @martishka, @guardian, @bevmaier, @gonefishinmt.
Bonnie, could you give us a few more details? Do you have afib, even after the ablation was done?

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I do not have a-fib since my ablation. I was told they did the ablation on the AV node (where the heart normally receives the impulse to beat) so I am now pacemaker dependent. Without it, I do not have a heartbeat.<br>

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Hi @bonniecanby,

There are a few Connect members who may be able to provide some insight; please meet @martishka, @guardian, @bevmaier, @gonefishinmt.
Bonnie, could you give us a few more details? Do you have afib, even after the ablation was done?

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I had a av node abilation with a doublelead pacemaker on Jan.3, 2017, I was in permanent a-fib and very symthomatic. Anyone else have this problem?

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Good Morning! I posted a while back about my husband's saga with infection/rejection of his two pacemakers since June 2015. Well now he is on pacemaker number 3 and is rejecting in just after two short months. His EP has referred him to Kansas City where there is a surgeon who implants the tiny lead-less pacemakers directly into the heart. Has anyone that has had complications gotten one of these and how has it worked for you? thanks in advance.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Nope. You put me to shame. I would think by Spring all restrictions currently placed on you would be lifted (pacemaker ones) and would be an excellent time to get back into your routine. Just remember to follow your PCP's orders. With your blood pressure concerns you might have to adjust and plan accordingly. Keep us posted.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I'm tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don't you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Thank you for this discussion group. I received a pacemaker last wk. A total surprise for me . As well as being put on Lisinopril for high blood pressure. Prior to that I was trying to control my blood pressure through natural remedies, herbs and vitamins to no avail. After several near fainting and fainting episodes I ended up with a concussion and in the hospital . Since Jan of this yr. 2016 I have lost 72 lbs . and am no longer in the pre diabetic class. Yeah! I did this through a study group focusing on exercise and low fat diet. I am anxious to get back to my exercise programs of zumba, aqua zumba, the gym, and 5K's. The last 5K that I ran was the day before I collapsed and came in 6th of 19 in my age group(65-70) I would like to resume all these activities . Are any of you involved in this type of exercise and if so how did you feel when you went back to working out? Thanks in advance for any advice you can give me ...

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