1. < Pacemaker & ICDs
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Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Pacemaker & ICDs Support Group.

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carnes | @carnes | Sep 16, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

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Thank u so much for you time, your reply. I am 71 years old and don't do scary movies or thrill rides. My dr. is extremely laid back. No info from him. I don't get enough sleep, for 2 years I've not slept in bed due to heaviness in chest when I'm reclining position. I get about 3 hours a night sleep and know how harmful sleep mess csn be so I don't take them. Appreciate you research for me, thank u again.Sharon

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eileena | @eileena | Sep 16, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

Hi @carnes, welcome. Afib can be simply an indication of stress. The most helpful thing, aside from medications, can be to ensure you are exercising regularly, and resting sufficiently. The daily worries most of us are faced will increase Afib incidents as due to things like watching scary movies which are meant to cause your heart to race and riding those roller coasters that are included in the thrill rides section of amusement parks. Aging can be a contributor as well, but not always.

Mayo clinic has information you can research to learn causes. Your follow up with your doctor will probably give you more insight and he/she will likely provide you with some literature to take home that will provide you with more answers.

Please keep us informed about your progress.

Eileen

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carnes | @carnes | Sep 16, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

This is Sharon, I has the halter test 24 hours. I was told I have Afib. I was wondering the cause and treatment. Thank you

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eileena | @eileena | Sep 15, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

@bergem, What is a TEE? It is something I do not know about (yet).

Eileen

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Berge Markarian | @bergem | Sep 15, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

I had workup with Xray, blood tests, EKG,, Pacemaker interrogation and evaluation at Mayo.I was told my continuing A Fib or Atrial flutter causing my dyspnea, can not be treated with the Pacemaker and any further adjustments is not necessary. But I had a cardiac cath which revealed no occlusions and next Monday I will have a TEE and will stay 3 days in the Hospital to evaluate my candidacy for Tikosyn treatment, even though I had tried it in 2001 without benefit They did not encourage to perform Ablation due to higher risks and small chance of success
Thank you for your inquiry
bergem

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 15, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

Hi @bergem,

How are you? I hope everything went well at your appointment? Please keep us updated, and let us know if you have any questions or concerns we can help with.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 9, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

Hello @bergem

We wish you well as you go to Mayo Clinic this month. We would love for you to update us after your appointment.

Teresa

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 6, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

Hi @bergem
I'm so glad to learn that you are coming to Mayo Clinic...you are in good hands!
Please keep us updated, and let us know how your evaluation goes.

REPLY
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eileena | @eileena | Sep 6, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

Sometimes you need to read up on things outside of the medical offices. However, if the pacemaker is what you needed it is good your doc went that direction.

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shortshot80 | @shortshot80 | Sep 6, 2017
In reply to @kanaazpereira "Hello @bergem, I moved your message to this discussion group where you can meet others who..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @bergem,

I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I'm also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.

@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?

Jump to this post

Shortshot80)Nancy.... I have a pacemaker that I received in 2007. I was in the hospital for a change of medication. Doc tried to change meds for four days and nothing was working. My BP kept dropping into the 30's so a pacemaker was implanted and I feel fine. Due for a change soon. Not sure when that will happen, But I'm glad I have it. I try to to what my doc wants without too much talking. If he want it, it must be needed. Nancy

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