Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@ajnewyork

Hello. I had a pacemaker implanted about 6 days ago and have had a few episodes of pain in the area of my diaphragm and some acid-reflux this morning. I have rarely had heartburn or acid-reflux and I'm wondering if anyone has had it with a pacemaker. It could also be caused by the fact that I have had to stop swimming (and most all exercise) following the pm placement or that I was essentially in bed for 3 days last week at the hospital or that I've been taking a lot of tylenol for pain recently (just stopped). If anyone has info to share, I'd be grateful to hear from you. Many thanks!

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Hi: I've had PM for 10 months. I still have minor pain from time to time. After surgery, it was quite painful and that lasted many months. It's a tricky area to operate on. My surgeon was gruff and not at all concerned about my pain level, during surgery and after! I still have pain during some activities. Hang in there- it does improve.

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@ajnewyork

Thank you so much! Yes, I stopped and the reflux has stopped too.

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thank you for your informaton , rsteve

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@bettysamny

But if heart is back I rhythm does that stop the pauses.seems like if in AFib pauses always can happen.One could pass out. So thinking pacemaker corrects pauses but not AFib.Is that right.Trying to understand this.

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Hi Betty, I'm not sure I understand pauses. Unfortunately I'm not super familiar with afib, I had a friend who had it and if he went into afib and either the pacemaker or by itself did not come back into rhythm he would go to an er and get converted. It sounds like these pauses are skipped beats? I used to have what doctors called Pvcs which do feel uncomfortable but are not usually bad enough to need treatment. Could these be what your calling pauses? Pvcs by the way stands for premature Vintricular contraction and are basically skipped beats.
Of they in your case are more often that occasional I understand there are treatments for them but I'm nit familiar with those treatments. I did have them myself but only for short periods and myndoctr sad they were not often enough to be of concern. Sorry I couldn't help more on that area.

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@atina

Tylenol is most likely the culprit…now that you have stopped taking tylenol you will see if your acid reflux goes away

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Thank you so much! Yes, I stopped and the reflux has stopped too.

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@bettysamny

But if heart is back I rhythm does that stop the pauses.seems like if in AFib pauses always can happen.One could pass out. So thinking pacemaker corrects pauses but not AFib.Is that right.Trying to understand this.

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I am wondering if the pacemaker stops the afid from happening

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@danab

Hi Betty, yes I can answer that question, I thought i gave a response a few days ago,Got to love technology. Anyway I apologize for that. First off I don't have afib mine was called Vintricular Tachycardia or VT for short. It affects the lower part of the heart which is the main pump. From when I would go into an arrhythmia or basically a rapid pulse usually so fast no blood is moving. If it stays in that state more than a couple of min you can be basically in full blown cardiac arrest. So that's why seconds count and if the pacemaker could not get the heart back into rhythm the defibrillator part would shock me from the inside just like they do from the outside. This is all setup ahead of time and certian settings would see the arrhythmia evaluate the best treatment and deliver it.

Now with the ablation yes they can be done with the pacemaker temporarily shut off by a technician while the ablation is going on. That part is similar to afib is that they are trying to find the bad paths that cause the heart to go out of rhythm, then ablate those by burning or freezing the nerve ends to eliminate then from causing the problem. Hope that explains your questions. Please feel free to ask anything you like. I look forward to hearing how they decided to help you

Jump to this post

But if heart is back I rhythm does that stop the pauses.seems like if in AFib pauses always can happen.One could pass out. So thinking pacemaker corrects pauses but not AFib.Is that right.Trying to understand this.

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@rastevens

I am getting a pacemaker March 23. The small one to be placed in a ventrical via my groin.
I am afib and have been taking Eliquis for several years. Will there be a way to see if the pacemaker
has eliminated the need for the Eliquis.

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My husband has a pacemaker since 10 years; he is having the battery replaced today. His Cardiologist has kept him on Eliquist all that time. Your situation may be different only your Cardiologist can tell.

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@ajnewyork

Hello. I had a pacemaker implanted about 6 days ago and have had a few episodes of pain in the area of my diaphragm and some acid-reflux this morning. I have rarely had heartburn or acid-reflux and I'm wondering if anyone has had it with a pacemaker. It could also be caused by the fact that I have had to stop swimming (and most all exercise) following the pm placement or that I was essentially in bed for 3 days last week at the hospital or that I've been taking a lot of tylenol for pain recently (just stopped). If anyone has info to share, I'd be grateful to hear from you. Many thanks!

Jump to this post

Tylenol is most likely the culprit…now that you have stopped taking tylenol you will see if your acid reflux goes away

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@bettysamny

That or another ablation. Have had two. Concerned about the pauses. Can you explain how they saved your life? I didn't know you could have a pacemaker and still have ablatons.So confusing. Think I have both. tachycardiaa and brack......meaning slow. I rarely have symptoms I feel. Ablations work for a while but then I go into afib again.

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Hi Betty, yes I can answer that question, I thought i gave a response a few days ago,Got to love technology. Anyway I apologize for that. First off I don't have afib mine was called Vintricular Tachycardia or VT for short. It affects the lower part of the heart which is the main pump. From when I would go into an arrhythmia or basically a rapid pulse usually so fast no blood is moving. If it stays in that state more than a couple of min you can be basically in full blown cardiac arrest. So that's why seconds count and if the pacemaker could not get the heart back into rhythm the defibrillator part would shock me from the inside just like they do from the outside. This is all setup ahead of time and certian settings would see the arrhythmia evaluate the best treatment and deliver it.

Now with the ablation yes they can be done with the pacemaker temporarily shut off by a technician while the ablation is going on. That part is similar to afib is that they are trying to find the bad paths that cause the heart to go out of rhythm, then ablate those by burning or freezing the nerve ends to eliminate then from causing the problem. Hope that explains your questions. Please feel free to ask anything you like. I look forward to hearing how they decided to help you

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Is that a possibility ?

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