Ostomy: Adapting to life after colostomy, ileostomy or urostomy

It takes time to become comfortable with an ostomy — a surgically created opening in your abdomen that allows waste or urine to leave your body.

Many questions may run through your mind as you practice good ostomy care and live your life. It can help to talk to others who have been there. Perhaps you’d like to ask others questions like: What can I eat? What about leaks? Can I go back to work after colostomy? Can I ride a bike with an ileostomy? Will everyone figure out I’ve had urostomy surgery just by looking at me? What about intimacy?

Welcome ostomates. Let’s talk frankly about living with an ostomy. Why not start by introducing yourself? What type of ostomy do you have? How’s it going?

Anal cancer 6 years ago! Chemo etc! Ileostomy! Reconnection failed! Now colostomy! It prolapsed to 5” year ago! Now not even an inch! Had blood clots in both lungs twice! They said I should be in the ground! Spouse of 40 years passes while I was having surgery! Don’t remember how I survived by myself in 2 story house! Now having back problems! Had rods put in for nothing! So much scar tissue in abdomen, had to go into back! Neuropathy in both feet! Nothing has worked! Joined senior citizens for lunch everyday! Also 2 years ago joined dating sites to keep me from going crazy! Lot of lonely people out there! Am 68!

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@wilcy

Anal cancer 6 years ago! Chemo etc! Ileostomy! Reconnection failed! Now colostomy! It prolapsed to 5” year ago! Now not even an inch! Had blood clots in both lungs twice! They said I should be in the ground! Spouse of 40 years passes while I was having surgery! Don’t remember how I survived by myself in 2 story house! Now having back problems! Had rods put in for nothing! So much scar tissue in abdomen, had to go into back! Neuropathy in both feet! Nothing has worked! Joined senior citizens for lunch everyday! Also 2 years ago joined dating sites to keep me from going crazy! Lot of lonely people out there! Am 68!

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Hello, @wilcy Whew! A lot going on with you. How long have you had your colostomy? Are you accustomed to it and keep it working? You sound like someone with lots of energy! Have you ever thought of putting your energy into volunteer work? I’ll bet a lot of groups would your your energy!

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