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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@darin

Wondering if theres any good reports of this. Have had colitis for 5 years and tried alot of drugs but the only one that worked was simponi. Unfortunately I was diagnosed with skin cancer after being on it. So after 3 surgeries to remove my melanoma and glands from my armpit, I am on entyvio and it is not working very well. So now I am worried I may need this procedure and I have a very physical job, and worried I will have to carry a bag the rest of my life. I'm only 43 and wondering if anyone has some advice or maybe something like this.

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Replies to "Wondering if theres any good reports of this. Have had colitis for 5 years and tried..."

@darin Welcome to Mayo Connect,

I am sorry to hear of your longstanding problem with colitis. I can understand your concern regarding surgery.

We do have a discussion group on Connect that deals with ostomies I would encourage you to read those posts. Here is the link to those discussions, https://connect.mayoclinic.org/discussion/ostomy-adapting-to-life-after-colostomy-ileostomy-or-urostomy/

If surgery seems to be your only option, will you be getting a second opinion?