@jaleen

I came to the same conclusion as you, but based on user comments on a variety of sites, including Mayo Clinic Connect. I have not seen any reports in the media that can be called “bad reports” – the ones I’ve read have all said that more women with osteoporosis should be taking these drugs. Could you please tell me where you have seen these “bad reports” types of stories?

Jump to this post

Lanadee, It is important to do what is right for you. As the NOF article states “A medicine that is appropriate and effective for one person may not be the best choice for another person. People can respond differently to treatment with the same medicine.”

Luckily there are lifestyle choices you can make to help https://www.nof.org/prevention/preventing-fractures/prevention-and-healthy-living/ I bet you look forward to being able to return to adding exercise to your routine. Good luck with the healing of your toe.

Colleen, while reading the info you suggested I did find something of interest. You are right. Everyone must decide for themselves as to whether or not the medication prescribed is right for them. I found, amongst the reading, information regarding a supplement that is not FDA approved as yet. That is what I may try. Genistein: An isoflavone phytoestrogen which is the main ingredient in the prescription “medical food” product Fosteum® and generally regarded as safe by the FDA. Genistein may benefit bone health in postmenopausal women but more data are needed to fully understand its effects on bone health and fracture risk.
Thanks so much for sharing!

Hi, I am new to this group and just got a bone density scan of -2.5. My doctor prescribed Fosamax but after reading about side effects, I decided not to take it but am interested in any kind of treatment that might build bone density. Any ideas or experience with this?

@jeray

Hi, I am new to this group and just got a bone density scan of -2.5. My doctor prescribed Fosamax but after reading about side effects, I decided not to take it but am interested in any kind of treatment that might build bone density. Any ideas or experience with this?

Jump to this post

Hi Jeray,
I moved your message to this discussion about treating osteoporosis so you can meet others members discussing the exact things your asking about re Fosamax etc. Here you’ll meet @lanadee @edieguinn @jaleen @cherriann @tessie @dolan @grandmabubblestwin
Jeray, I encourage you to click VIEW & REPLY in the email and read all the messages in this discussion. There are some good resources included to help your decision making.

You can also read more members’ experiences with Fosamax in this discussion http://mayocl.in/2gm3GcW

What side effect do concerns you the most?

@jeray

Hi, I am new to this group and just got a bone density scan of -2.5. My doctor prescribed Fosamax but after reading about side effects, I decided not to take it but am interested in any kind of treatment that might build bone density. Any ideas or experience with this?

Jump to this post

My doctor has me on yearly infusion of Reclast. No side effects. Next one March

@jeray

Hi, I am new to this group and just got a bone density scan of -2.5. My doctor prescribed Fosamax but after reading about side effects, I decided not to take it but am interested in any kind of treatment that might build bone density. Any ideas or experience with this?

Jump to this post

I have metastatic breast cancer.  It has metastatised to my bones so my oncologist put me on a monthly injection of Xgeva.  I am now on a quarterly injection of Xgeva after about 2 years of the monthly injections.  I think if you read up on Xgeva you will find that it is designed to increase bone density.  I personally have had no side effects from the injections.  The shots are about $2000 so you might check to make sure they are covered by your insurance.  I also eat a Tums for calcium every day.  I have had not broken bones and my bone scans show an increase in bone density.  Good luck.

@edieguinn

Has any one seen reports for Reclast? That’s the yearly infusion I’ve had once. Rescheduled for second one in march. I haven’t seen any bad reports on it

Jump to this post

I’m beginning to wonder Reclast compared with Prolia. I’ve had Prolia once, next dose in January therefore you take meds yearly, and me every 6-months. I haven’t any side effects but both compare equal as far as I know. Perhaps it’s where the bone loss is. My doc told me not to worry, but Prolia the rest of my life makes me doubtful. Regardless, I’m doing as I’m told.

@jeray

Hi, I am new to this group and just got a bone density scan of -2.5. My doctor prescribed Fosamax but after reading about side effects, I decided not to take it but am interested in any kind of treatment that might build bone density. Any ideas or experience with this?

Jump to this post

Hello Wandering, I read your post and want you to know I am so sorry to hear about your battle with breast cancer. I know it is tough. I am glad your Xgeva is working for you! I am going to try the Soy isoflavones as it contains Genistein. Some studies have indicated this also builds bone but is not FDA approved yet. I can’t bring myself to use a medicine that is controversial. Many blessings to you! lanadee

@grandmabubblestwin and all, for those anxious about getting enough calcium without taking supplements, a new article from Nutrition Action may be interesting. For example, it tells me that my favorite vegetable (broccoli) is super at building my calcium levels with minimal threat of kidney stones or arterial blockages. Other plant foods also are appraised. Take a look:
http://www.nutritionaction.com/daily/what-to-eat/is-it-true-that-plant-foods-are-a-better-source-of-calcium-than-dairy-foods

Thank you for the valuable information, I will definitely read up on it, thank you again

@jeray

Hi, I am new to this group and just got a bone density scan of -2.5. My doctor prescribed Fosamax but after reading about side effects, I decided not to take it but am interested in any kind of treatment that might build bone density. Any ideas or experience with this?

Jump to this post

I am struggling with making a decision on medication for osteoporosis. The potential side effects are for me frightening. I have started working with a trainer. Have increased my calcium intake—by of all things turning egg shells into a powder and taking about a quarter teaspoon a day which is supposed to have about 450 mg of calcium. I have also been reading about soluble corn fiber having an effect on bone density based on a small study coming out of Purdue university. I am wondering if others have come across the egg shell and corn studies.Thanks, Gloria

@jeray

Hi, I am new to this group and just got a bone density scan of -2.5. My doctor prescribed Fosamax but after reading about side effects, I decided not to take it but am interested in any kind of treatment that might build bone density. Any ideas or experience with this?

Jump to this post

I was not familiar with the soluble corn fiber. Here is a link to an article on it, for others who may be interested:
https://www.purdue.edu/newsroom/releases/2016/Q3/soluble-corn-fiber-can-help-young-women-build-bone,-and-older-women-preserve-bone.html

Wondering about possible connections to my 5th Reclast infusion to my life? Lots started soon after the infusion that was given outside of Mayo.
Stupid on my part. I know the time I spent with the Reclast infusion was less, how much time is required for the infusion to go into blood stream?

How can I find out without to make sure I even got the Reclast and not something else? Do not trust or thought this guy knew much?
Sure I need to go to office for all written notes, reports, but s there a number on the infusion vial?

Have the DNA of osteopenia, blue eyes, short, Nordic, mother had but she broke her pelvis in her 90. I'm only 71.

What are problems with reversing it…who knows, and who knows ahead of the long term research on the Reclast, it has helped keep me in
osteopenia. So good for that, but my teeth are now falling apart, chipping every week, gums in recession big time, and doing all dental to prevent
the periodontal disease…? Help, parts of teeth are cracking off weekly…something chemical in my body, got to be?
Help? Just writing to you helps me….thanks for Connect.

I'm considered high risk for fractures and have tried a few meds, like Actonel. I stopped taking because I had bad body aches in my hip, back, and legs. After 15 minutes into my walk I would be limping from pain. Worse, is the awful itchy rashes . I also noticed increased sweats especially at night. My understanding is these meds do not build new healthy bone, but rather they stop shedding of old bone. After much research, I decided to go the natural route, with homemade bone broth(Google benefits), calcium citrate, along with a multi, and walks 3x a week or more. Broccoli, and many greens should help too.
It 's also said that Progesterone is needed for bone health, but I couldn't say whether that really helps. I'm not due for a bone density until next year. My body pains have stopped within weeks after discontinuing Actonel. Dr originally want me to have the injection type, but we agreed to see how I do with orals. I highly doubt would I ever try another bone med. I'll diligently try my natural remedies and see what happens.

@AgentDarien

Wondering about possible connections to my 5th Reclast infusion to my life? Lots started soon after the infusion that was given outside of Mayo.
Stupid on my part. I know the time I spent with the Reclast infusion was less, how much time is required for the infusion to go into blood stream?

How can I find out without to make sure I even got the Reclast and not something else? Do not trust or thought this guy knew much?
Sure I need to go to office for all written notes, reports, but s there a number on the infusion vial?

Have the DNA of osteopenia, blue eyes, short, Nordic, mother had but she broke her pelvis in her 90. I'm only 71.

What are problems with reversing it…who knows, and who knows ahead of the long term research on the Reclast, it has helped keep me in
osteopenia. So good for that, but my teeth are now falling apart, chipping every week, gums in recession big time, and doing all dental to prevent
the periodontal disease…? Help, parts of teeth are cracking off weekly…something chemical in my body, got to be?
Help? Just writing to you helps me….thanks for Connect.

Jump to this post

@AgentDarien, I can hear the concern and urgency in your post. If you are comfortable sharing, was the place you received your reclast infusion recommended to you by a provider? Have you discussed your current symptoms with a provider? I worry that the only way to properly address your concerns would be by consulting a provider that you trust.