Orthostatic Tremor & My Blog Posts

Orthostatic Tremor Awareness month of September

I am Kim, diagnosed at Mayo of Rochester this past May 2021 with Orthostatic Tremor

Most PCP and health care providers have never heard of OT - let’s change that fact. This is a worthy fight. Please feel free to share this blog series of September with all your health care team, loved ones and friends - let’s lead out with AWARENESS

To define it by its classic symptoms - when an OT patient stands their legs begin to tremor, causing feelings of instability only when standing still. No tremor when sitting, or walking at a pace with momentum. Walking slowly in a small area or stalling with shopping is difficult. Standing at a line waiting causes us to be anxious, shifting our weight back and forth rhythmic helps push the tremor into control, or stepping leg to leg, 5-10 minutes in limit for patients with a moderate case, (no time of standing duration for many as we progress in severity). Deep breathing helps with the anxieties in a public settings of standing in lines or a slow shopping pace of difficulty. Many use walkers with seats. Shopping carts or anything to hold our weight helps.
It has researched as a progressive neurological is effecting many younger people as well as the elders of 60 and over.
We need to be heard.

In short - we can’t stand or we are very limited in standing for any length of time. It causes a very anxious feelings in public settings and we are at an absolute loss for a logical way to express for understanding.

September being Orthostatic Tremor awareness month.
I am starting early at joining the charge for continued research and awareness, using my blog site with the intent to provide encouragement, support and information - inviting anyone who wishes to share these blogs to help.

This is the 1st blog in a very informative series of 9 blogs

Hoping to be able to share with others who feel the despair of so little, by way of support and awareness with my 9 series blog as I publish it.
September is Orthostatic Tremor awareness month.

Blog 1) Orthostatic Tremor Awareness
https://happytrails2u.blog/2021/08/20/orthostatic-tremor-awareness/

Blog 2) Orthostatic Tremor Essentials of Advocating
https://happytrails2u.blog/2021/08/23/blog-2-orthostatic-tremor-essentials-of-advocating/

Blog 3) My Story of Orthostatic Tremor
https://happytrails2u.blog/2021/08/28/3-my-story-orthostatic-tremor/

Blog 4) Inform Your Healthcare Team - Orthostatic Tremor Awareness Month
https://happytrails2u.blog/2021/09/01/blog-4-inform-your-health-care-team-orthostatic-tremor-awareness/

Blog 5) Managing mentally – Orthostatic Tremor
https://happytrails2u.blog/2021/09/02/orthostatic-tremor-managing-mentally/

Blog 6) Managing and navigating physically with Orthostatic Tremor
http://happytrails2u.blog/2021/09/14/6-managing-and-navigating-physically-with-orthostatic-tremor/

Blog 7) Helping your family members and loved ones understand Orthostatic Tremor.
https://happytrails2u.blog/2021/09/20/7-helping-your-family-members-and-loved-ones-understand-orthostatic-tremor/

Blog 8) Relevant Research and Resources on Orthostatic Tremor
https://happytrails2u.blog/2021/09/23/8-relevant-research-and-resources-on-orthostatic-tremor/

9) Orthostatic Tremor Encouragements and strength in Faith.
https://happytrails2u.blog/2021/09/24/9-orthostatic-tremor-and-a-walk-in-faith/

More to follow...