Orthostatic Tremor & My Blog Posts
Orthostatic Tremor Awareness month of September
I am Kim, diagnosed at Mayo of Rochester this past May 2021 with Orthostatic Tremor
Most PCP and health care providers have never heard of OT – let’s change that fact. This is a worthy fight. Please feel free to share this blog series of September with all your health care team, loved ones and friends – let’s lead out with AWARENESS
To define it by its classic symptoms – when an OT patient stands their legs begin to tremor, causing feelings of instability only when standing still. No tremor when sitting, or walking at a pace with momentum. Walking slowly in a small area or stalling with shopping is difficult. Standing at a line waiting causes us to be anxious, shifting our weight back and forth rhythmic helps push the tremor into control, or stepping leg to leg, 5-10 minutes in limit for patients with a moderate case, (no time of standing duration for many as we progress in severity). Deep breathing helps with the anxieties in a public settings of standing in lines or a slow shopping pace of difficulty. Many use walkers with seats. Shopping carts or anything to hold our weight helps.
It has researched as a progressive neurological is effecting many younger people as well as the elders of 60 and over.
We need to be heard.
In short – we can’t stand or we are very limited in standing for any length of time. It causes a very anxious feelings in public settings and we are at an absolute loss for a logical way to express for understanding.
September being Orthostatic Tremor awareness month.
I am starting early at joining the charge for continued research and awareness, using my blog site with the intent to provide encouragement, support and information – inviting anyone who wishes to share these blogs to help.
This is the 1st blog in a very informative series of 9 blogs
Hoping to be able to share with others who feel the despair of so little, by way of support and awareness with my 9 series blog as I publish it.
September is Orthostatic Tremor awareness month.
Blog 1) Orthostatic Tremor Awareness
Blog 2) Orthostatic Tremor Essentials of Advocating
Blog 3) My Story of Orthostatic Tremor
Blog 4) Inform Your Healthcare Team – Orthostatic Tremor Awareness Month
Blog 5) Managing mentally – Orthostatic Tremor
Blog 6) Managing and navigating physically with Orthostatic Tremor
Blog 7) Helping your family members and loved ones understand Orthostatic Tremor.
Blog 8) Relevant Research and Resources on Orthostatic Tremor
9) Orthostatic Tremor Encouragements and strength in Faith.
More to follow…