Orthostatic Hypertension: Have you found answers?
Hi everyone. I am wondering if anyone else is going through this as well.
I am 26 years old and when i was 24, I got a blood pressure reading of 140/104. Prior to this I had blood pressure ranging from 100/60 to 110/70. I started to take it at home more often and noticed I hadlow to normal blood pressure when laying and sitting and HIGH blood pressure when I stand up.
When I stand my BP can rise as high as 175/125.
I sit back down for 10 mins and it drops back down.
While sleeping my bp can go as low as 80/40. (per 24 hr BP monitor)
I have been to countless doctors.. nephrology and hypertension, neurology, endocrinology, cardiology. We have ruled out rare things like pheocromocytoma (although i do have slightly elevated metanephrines) but have had a full body scan and no pheo-para has been found. I sometimes also have elevated heart rate (as high as 160 when standing which is typical for POTs.)
I was recently diagnosed with the hyperadrenergic subtype of POTS..and they want to blame my symptoms on that. But something still doesn't seem right.
I will be traveling from New England in Jan/Feb for the mayo clinic florida campus.
I am hoping to get answers, because right now it feels hopeless.
has anyone here had similar symptoms and have you had luck finding answers?
Thank you 🙂