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Orthostatic Hypertension: Have you found answers?

Visiting Mayo Clinic | Last Active: Jan 7 7:27pm | Replies (8)
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@debphx2021

I started having symptoms in 1978, syncope changed my life. Finally got POTS dx. Hydration helped me. Recumbent exercise bike and walking helped too. New small fiber neuropathy diagnosis which could be the explanation behind the POTS too. Also had chronic fatigue, falling, balance etc. eat healthy, don’t drink. Take BP Meds daily. Doing much better but still agree with you that there still seems to be something else. If I get more I will share info.

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Replies to "I started having symptoms in 1978, syncope changed my life. Finally got POTS dx. Hydration helped..."
Colleen Young, Connect Director | @colleenyoung | Dec 15, 2021

@debphx2021 your story and symptoms remind me of @rwinney's story. I like your lifestyle approach with hydration, exercise and balanced eating. Despite doing much better, you mention there still seems to be something. Can you elaborate?

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Rachel, Volunteer Mentor | @rwinney | Dec 16, 2021

@debphx2021 Hello. It sounds like your doing a pretty good job at controlling symptoms. When such a plethora of symptoms present, it does become confusing.

I live with Central Sensitization Syndrome (CSS) which is an umbrella that can encompass many chronic pain and sensory symptoms.

Here is a video on CSS in case your interested in learning about it:

https://youtu.be/8defN4iIbho

Have you learned any more about your condition since you posted last?

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