Oral Lichen Planus, how are you coping?

Posted by zinnia55 @zinnia55, 21 hours ago

I was diagnosed with erosive OLP in May. I have drastically changed my diet and bevergaes. What happens when you get sick like a cold or flu does it cause a flare? How do you keep a strong immune system when its attacking you? Any coping mechanisms, tips , tricks or advise welcome. Also is anyone in a clinical trial?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Becky, Volunteer Mentor | @becsbuddy | 16 hours ago

@zinnia55 Welcome to Mayo Clinic Connect! This disease/headache/problem is pretty common here in Connect.. Have you received any treatment or referrals to specialists like a rheumatologist? They are the ones who mainly treat this disease. Oral surgeons and dermatologists also get involved. You’ll find out more as the members get into this discussion. I have posted a link to all of the discussions about OLP. You can read through these and get ideas of how other members cope.
https://connect.mayoclinic.org/group/autoimmune-diseases/?search=OLP#discussion-listview
Sure hope this will get you started!

chrisanon | @chrisanon | 1 hour ago

In reply to @becsbuddy "@zinnia55 Welcome to Mayo Clinic Connect! This disease/headache/problem is pretty common here in Connect.. Have you..." + (show)

@becsbuddy @zinnia55
Gastro also treats EoE, OLP, ELP etc. In fact, at Mayo I was diagnosed by an EGD for EoE and ELP. He wants me to follow up after each EGD to treat the strictures caused by ELP and to be seen by a dermatologist. My dentists and perio are also keeping an eye on things. Diet has changed alot - for the better. Good luck!