Optic Neuropathy within the past 10 days

Posted by angelagrace1217 @angelagrace1217, May 7, 2019

Hi all – My husband started having vision issues about 10 days ago. A week ago he went to the eye doctor who discovered a swollen optic nerve. She recommended he go to the ER that evening for a MRI which came back clear. A couple more doctor's appointments have given us very little information except that this is optic neuropathy, it's possibly genetic and that there is about 1/3 chance it will improve, 1/3 chance stay the same, 1/3 chance it will get worse. And about the same odds for the other eye. I am giving myself major anxiety and fear with google; so I am hopeful this group can be a support as we start to navigate this road. We are hopeful to get an appointment with Mayo Florida sooner than later.

Is there any additional research or statistics about the chances of the other eye being affected? Please share anything you know.

Thank you so much.

Hi @angelagrace1217, welcome to Connect. I'd like to bring fellow Connect members into this discussion, like @weezy1939 @lioness @marcog @pslabels @mlbondurant @stobie2019 @stitchit57, who can share their experiences with you. You may also be interested in reading this discussion:
– Non arteritic ischemic optic neuropathy https://connect.mayoclinic.org/discussion/non-arteritic-ischemic-optic-neuropathy/

Angela, I can imagine that you and your husband are concerned and anxious about this development. The unknown is scary. Does your husband have any underlying conditions? Were you given any medication or instructions to help reduce the swelling?

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@colleenyoung

Hi @angelagrace1217, welcome to Connect. I'd like to bring fellow Connect members into this discussion, like @weezy1939 @lioness @marcog @pslabels @mlbondurant @stobie2019 @stitchit57, who can share their experiences with you. You may also be interested in reading this discussion:
– Non arteritic ischemic optic neuropathy https://connect.mayoclinic.org/discussion/non-arteritic-ischemic-optic-neuropathy/

Angela, I can imagine that you and your husband are concerned and anxious about this development. The unknown is scary. Does your husband have any underlying conditions? Were you given any medication or instructions to help reduce the swelling?

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hi there! thank you for your quick reply and support. I forgot to mention what he is seeing, which may help.

Out of his left eye, he is seeing a blacked out bar with blurriness underneath. above the line is clear and his right eye is clear. he is experiencing headaches due to bright lights above him or anything on the floor that is bright, like an airport terminal.

he does not have any underlying conditions and he is adopted so unfortunately we do not know the genetic history.

there was no medication or instructions given to him at all. we were basically told there was nothing that can be done and it may or may not get better. hopefully we can find out more here or through mayo because google-ing and researching is causing me major fear for eventual blindness.

thank you so much.

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@angelagrace1217 I'm so sorry for your husbands condition. I would suggest in order to help save sight on other eye is to wear sunglasses when in brightness inside and out Also is he on eye vitamins? I have Macular Degeneration and Dr put me on ARMD with vitamind@minerals This is what Opthalmologist told me to take Is he seeing his Eye Dr? I can't tell you what to do only your Opthalmologist but this is what my Dr has me on. This is over the counter

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@angelagrace1217 I lost almost all my vision in right eye in 2011. I found out there are many people living with one eye and after adjusting to it I totally forgot about it except when I got to a stop sign. That was after I almost had several accidents because I forgot I couldn't see out of right eye. I would always remember to look to the right several times before pulling out. This past winter I was told I needed cataract surgery but between appointments realized my sight was getting worse and then was diagnosed with non arteritic ischemic optic neuropathy in my left eye. I am a person who can get into total denial about happenings. My eye condition has stabilized. I have no peripheral vision and can't see a thing under my nose but I can see my hands so I knit, play duplicate bridge and marathon bridge, walk the neighborhood and I just started gardening. I am thankful for every little bit of sight I have.

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@weezy1939 What s good attitude you have wonderful you haven't let the loss of your sight win over your personality Good for you If I ever lose my sight I hope I will have the same attitude 😎

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