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Onset or flare of lichen planopilaris associated with a vaccine.
Has anyone associated LPP onset or flareup with medication or vaccines?
I have had flu vaccines for many years without adverse effect. In 2021, I began receiving Covid vaccine and boosters. In 2022, I had a scalp biopsy, thinking I was having a reoccurrence of basal cell on the scar left from previous surgeries. Negative. Result was defined as neoplasm of unknown behavior. In 2023, scalp itch became intense and early in 2024 received diagnosis of LPP. Doxycycline with Clobetasol helped symptoms, but I had to stop Doxycycline because it is an ototoxic antibiotic that has worsened by tinnitus. I continue to use Clobetasol, Rogaine 5%, Viviscal Pro, Biotin 5000 and will start Naltrexone 3mg. My treatment is further complicated because I have ocular hypertension and I needed multiple eye doctors' reassurance to use Clobetasol, and I am reluctant to try steroid injections. For months have been increasing the variety of plant based foods and have taken 1500mg of Tumeric daily for a couple of years. I am afraid to get further vaccines but also concerned about getting flu or Covid as I am nearly 77.
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This sounds like a tough case -
Sounds like perhaps your medications need adjustment.
We are so lucky to have Mayo Clinic. We hope you find some relief.
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1 ReactionI had my first LP outbreak within days of getting the flu vaccine too.
I appreciate hearing of your experience. Did you have prior flu vaccines without a problem?Have you had any vaccines since LP onset? I had both the Covid and Flu vaccines before my LPP onset and since Covid vaccines were new I assumed that may have been the trigger. I had been having Flu vac for many years and never had any issue. Good Luck!
Hair loss started a couple of months after Covid vaccine but wasn't diagnosed for two more years. Biopsy said LPP. I've also had occupational chemical exposure that my doctor said might be a cause. Doxycycline, clobestasol and steroid injections maybe are helping but definitely not stopping hair loss. I've been on doxy. and using clob. for a year now and am worried about long term side effects. Hydroxycloroquine caused eye problems after a month so I stopped it. Steroid injections are causing neuropathy, probably caused by chemical sensitivity. I feel like I'm running out of treatment options. Has anyone had other treatments that seem to be working?
I was recently diagnosed with LPP and FFA and believe I was misdiagnosed for many years. I am looking for a support group. Do you have any ideas?
I hadn't thought about a support group before but like the idea. I did a Google search and found an organization called Scarring Alocopecia I know nothing about them but it looks like they do offer support groups. I'm really discouraged about the lack of treatment options that don't have serious side effetcs. I've been reading about laser light therapy and UV therapy. Have either been recommended to you; have you tried them? Any treatments that have worked for you? I'm a year into treatment and so far nothing has stopped the hair loss. Very upsetting.
I've had lichen planus since 2005 and have never noticed Covid or FLU Vaccines being a problem. What I have learned through research is be very leary of blood pressure medications as most can either cause or exaserbate lichen planus and lichen sclerosus. I'm searching for a BP medication, probably an old school medication that won't trigger my lp/as. I've never been able to get a definitive diagnosis. Still working on that one. 🤪
I would love to talk to you on the phone but we are not allowed to post phone numbers. My story is long.
I did sign up for the scarring alopecia support group. I live in Charlotte NC and it has been difficult to find a dr. I only had steroid injections and topical steroids as of last week.