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Profile picture for pollybaxter @pollybaxter

I hadn't thought about a support group before but like the idea. I did a Google search and found an organization called Scarring Alocopecia I know nothing about them but it looks like they do offer support groups. I'm really discouraged about the lack of treatment options that don't have serious side effetcs. I've been reading about laser light therapy and UV therapy. Have either been recommended to you; have you tried them? Any treatments that have worked for you? I'm a year into treatment and so far nothing has stopped the hair loss. Very upsetting.

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Replies to "I hadn't thought about a support group before but like the idea. I did a Google..."

I would love to talk to you on the phone but we are not allowed to post phone numbers. My story is long.

I did sign up for the scarring alopecia support group. I live in Charlotte NC and it has been difficult to find a dr. I only had steroid injections and topical steroids as of last week.