What side effects did you have with Ofev (nintedanib) for IPF?

Posted by robtlhughes @robtlhughes, Sep 2 7:47am

My IPF is mild, for now, but I'll start Olev next week. How long before I'll experience side effects? I read that "sublingual immodium" works better than the pills, but where do you get it? I don't see it on the Immodium web site. Are adult diapers a realistic option for getting out of the house? Thanks.

@robtlhughes, allow me to tag a few IPF members who have experience with Ofev (nintedanib) like @robinson @ligreen @kpeace @fracturedd @sassyboots @DennisAJ. I'm hoping they can share more about their experiences and answer your questions about bowel-related side effects, imodium, and potential need for adult diapers.

Here's a link to Imodium's Canadian website with info on the quick dissolve, sublingual tablet https://www.imodium.ca/products/imodium-quick-dissolve I didn't see it on the US site either.

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I’ve been on ofev for 3 years. First 6 months was ok. I’ve had severe diarrhea ever since. It’s debilitating. Imodium helps sometimes. I mostly stay close to home.

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Has anyone with IPF had Covid?

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@sassyboots

Has anyone with IPF had Covid?

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Did you contract COVID, @sassyboots?

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