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Olaparib for OC stage IV used for 7 years - stop or keep taking? Risk

Posted by zaneta78 @zaneta78, May 28, 2024

Hi,
Diagnosed with OC stage IIIc in 2015 at age 37, brca1+. Extensive surgery, platinum chemo x 6. Reccured 12 months later - 5 doses of caelyx and restaged to IV. On Olaparib 300mg per day since April 2017 (started from 800mg which I didn't tolerate, then 600mg- didn't tolerate as well). Never any problems with bloods counts, tolerating well, ca125- 8 every 3 months. CT scans every 3 months - clear. No other health issues.
Doctor wants me to stop taking olaparib die high risk of developing bone marrow and blood cancer.
Reading lots of stories where OC reccured in 12 months of stopi g olaparib... I am afraid of both (recurance and bone or blood cancer). Can't make a decision. Which risk is higher - recurance or blood&bone cancer? Anyone has any experience, their doctors opinions? Or articles I could read? I'm 46 now and not ready to deal with any cancer again 😢
Thanks

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ksifton | @ksifton | Jun 16 11:15pm
In reply to @naturegirl5 "@ksifton Oh, great. Now that you've "tagged" @zaneta78 hopefully she will get a notification and come..." + (show)
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@ksifton Oh, great. Now that you've "tagged" @zaneta78 hopefully she will get a notification and come back.

I can relate to your nervousness. I am 4.5 years out from my recurrence. I don't think about it every day but it's definitely there. I'm hoping for you that as time goes forward the nervousness will get less over time.

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@naturegirl5 I think my nervousness is the second guessing if going off the medicine is the right choice.
4.5 years! That is fantastic! And I am at a point finally in my journey that I don't think about it every day either. So thankful!

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