Okay, I need your responses and help with this one

Posted by kartwk @kartwk, Aug 11 12:10pm

H. FINALLY has a doc. apt. Wednesday for his annual physical. Now I have already sent the doc some of my concerns but my problem is that H can, at times, be just normal, especially for short periods or when passing the time of day with neighbors.

For years, though, in the doc's office he hasn't understood things and I have explained it or told him I understand what the Doc is saying, but that can happen to any of us which is why it is always good to have another person with you.

Yesterday I wanted to rent Jurassic Park on Fandango, we have an account. H insisted on putting in the information, which he had trouble with as it took him 4 tries to get it right before we even got to the password. The password has a $ in it and H kept putting in a ? instead of the $ sign. When I pointed this out he claimed that the $ sign WAS the ? symbol and after so many tries he got locked out. He got very angry when I suggested that he let me put in the code.

Well, needless to say, we didn't get to watch that movie as the atmosphere, him getting grouchy, went down the tubes.

This morning I told him that there was, on the news, an explosion at a steel plant in PA. His response was: "boy, they really are going after those clinics". I had no idea what he was talking about and I can guarantee he didn't either even though he tried to tell me that he thought I said clinic instead of steel mill which isn't even close.

Friday he was telling me Trump had put high tariffs on EGYPT and India because they were buying Russian oil! We all know that it is China and India not EGYPT. When I said he must mean China, he got snarky and claims that he said China not EGYPT. Folks, I have my wits about me, and my hearing and I know what he said because he said it twice. And before that it was that Iran was attacking Ukraine, mixing up Iran with Russia.

HOW do I explain that kind of stuff to the doctor? At first, months back I thought this was a slip of the tongue etc., but it is far too common to be that know IMHO.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for sillyblone @sillyblone

I feel for you. Last night my spouse started yelling at me and he said "you are messing with my phone". Not true I was on the couch watching a movie with him. Luckily I had suggested it or it would have been something he watches over and over. He said that I made google photos work with music. It has been doing that for a couple of year's. His phone was on the counter where he left it. So, I went to check if I could show him what happens to no avail. I was screamed at and I left the room. This morning I showed him on my phone. He still believes I made it happen. I have eaten with him and that is all I am doing as I refuse to be yelled at again. He has not spoken to me since. I have tried everything that I know and he is like a crazy person over the dumbest things. That is my rant for the day.

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My spouse is addicted to his phone and he only watches old movies, or movies with an actor he likes. I have given up trying to watch something new with him; I think it is because he cannot Follow the plot. I use the old movies as my own few minutes of zoning out, pretending to watch, reading, or anything to be close to him physically. I think I know half the dialog to The Green Mile and Shawshank.

I no longer try so hard to get him involved or interested in doing other things to stay busy. He loves going out and being around other people, even if he does not make much sense.

If you are paying for the renovation- are you able to talk with the contractor to speed up the process? Or if your son is doing it himself- paying for some extra help?

I pay for a lot of things to keep my spouse happy and try not to worry about our dwindling savings.

I am giving you a hug - you are not alone

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Profile picture for minniem @minniem

My spouse is addicted to his phone and he only watches old movies, or movies with an actor he likes. I have given up trying to watch something new with him; I think it is because he cannot Follow the plot. I use the old movies as my own few minutes of zoning out, pretending to watch, reading, or anything to be close to him physically. I think I know half the dialog to The Green Mile and Shawshank.

I no longer try so hard to get him involved or interested in doing other things to stay busy. He loves going out and being around other people, even if he does not make much sense.

If you are paying for the renovation- are you able to talk with the contractor to speed up the process? Or if your son is doing it himself- paying for some extra help?

I pay for a lot of things to keep my spouse happy and try not to worry about our dwindling savings.

I am giving you a hug - you are not alone

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Hello. He watches violent horrible movies. I am an Empath. I don't like seeing people being killed. He also watches the westerns from the 50's,60's and 70's. No plot and no one is really acting. He is starting into Sundowners and I think he knows it partly. I just went into the bedroom to watch a Hallmark movie.
I just came in after cleaning up 5 large palm leaves. Actually longer than my height. Tons of yard debris. It was not there yesterday until the rain and wind came. I quickly got cleaned up and made his lunch. He did say "Thank you". Probably the most conversation I will have all day. He is watching the news now. I wish I could carry on a conversation with him like we used to ..but it definitely will not happen. I cannot vacumn or even do the things I need to do as the TV is more important. I eventually can persuade him. But, again thank you for caring. 🫂

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Profile picture for sillyblone @sillyblone

Hello. He watches violent horrible movies. I am an Empath. I don't like seeing people being killed. He also watches the westerns from the 50's,60's and 70's. No plot and no one is really acting. He is starting into Sundowners and I think he knows it partly. I just went into the bedroom to watch a Hallmark movie.
I just came in after cleaning up 5 large palm leaves. Actually longer than my height. Tons of yard debris. It was not there yesterday until the rain and wind came. I quickly got cleaned up and made his lunch. He did say "Thank you". Probably the most conversation I will have all day. He is watching the news now. I wish I could carry on a conversation with him like we used to ..but it definitely will not happen. I cannot vacumn or even do the things I need to do as the TV is more important. I eventually can persuade him. But, again thank you for caring. 🫂

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That is what I really miss. Being able to have a real intelligent conversation with him, to do things together like we used to.
That is why I liken what I feel and is going on to grieving, you pray, wish, hope, etc. that things will go back to what they were but, even though I am only at the beginning of his issues, it is all downhill from here.

Though if he continues the talk about getting a horse I am going to tell him what my Dad told me when I was 8 or 9 and was pleading for a horse. That he couldn't standing having the horse clomp around the house and up and down the stairs all day following me. That comes to mind when H starts talking about horses.

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Profile picture for kartwk @kartwk

That is what I really miss. Being able to have a real intelligent conversation with him, to do things together like we used to.
That is why I liken what I feel and is going on to grieving, you pray, wish, hope, etc. that things will go back to what they were but, even though I am only at the beginning of his issues, it is all downhill from here.

Though if he continues the talk about getting a horse I am going to tell him what my Dad told me when I was 8 or 9 and was pleading for a horse. That he couldn't standing having the horse clomp around the house and up and down the stairs all day following me. That comes to mind when H starts talking about horses.

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I love the horse description! ✋️🫂

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Profile picture for sillyblone @sillyblone

I love the horse description! ✋️🫂

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Thank you. It worked with me. A lot better than just saying no.

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Profile picture for sillyblone @sillyblone

Hello. He watches violent horrible movies. I am an Empath. I don't like seeing people being killed. He also watches the westerns from the 50's,60's and 70's. No plot and no one is really acting. He is starting into Sundowners and I think he knows it partly. I just went into the bedroom to watch a Hallmark movie.
I just came in after cleaning up 5 large palm leaves. Actually longer than my height. Tons of yard debris. It was not there yesterday until the rain and wind came. I quickly got cleaned up and made his lunch. He did say "Thank you". Probably the most conversation I will have all day. He is watching the news now. I wish I could carry on a conversation with him like we used to ..but it definitely will not happen. I cannot vacumn or even do the things I need to do as the TV is more important. I eventually can persuade him. But, again thank you for caring. 🫂

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Hi, there are headphones he can wear, wireless, that will allow him to hear the TV if you are vacuuming. My Dad used them because of his hearing loss, so the TV wouldn't have to be at full volume and bother my Mom.

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My husband has moderate dementia. I have found that trying to correct my husband's misinterpretations of what has been said or what he has seen is not a positive move for either of us. It puts him on the defensive because it just points out his deficits in communication and abilities to do what he used to be able to do without help. I have learned to ask myself "Is this a hill I want to die on?"
I will usually not correct him but rather just acknowledge what he said. Something like "oh really?" "Is that so?"If he is having difficulty with a task I say something like " these ______ are so complicated, I sometimes have trouble too. Can I help you with that?" I have found that educating myself on what the symptoms of dementia ( brain failure) and positive approaches to care have been sanity savers for me. Getting a dementia diagnosis takes time if that is what you are dealing with. Other causes should be ruled out by your physician. If possible a consult with a neurologist might be helpful to both of you. My thoughts and prayers are with you. You are not alone.

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The doctor will more than likely give him a simple verbal and written test. He may ask for an MRI which is what my doc did. It showed the dementia. My husband was diagnosed 3.5 years ago but I know he had it 4-5 years earlier. The evidence was there but he refused to go to the doctor. Good luck,

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Profile picture for msbjean53 @msbjean53

The doctor will more than likely give him a simple verbal and written test. He may ask for an MRI which is what my doc did. It showed the dementia. My husband was diagnosed 3.5 years ago but I know he had it 4-5 years earlier. The evidence was there but he refused to go to the doctor. Good luck,

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Thank you and the others. I am getting the idea that it does take time to get a diagnosis long after we are aware of the problem.

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Just a comment on H giving things away, after the guy came by for the snowblower. Turns out his was one of the nearby neighbor's brothers who "spread the news" to him.
I got my courage up to walk over and tell him what I told his brother. That H was not in the condition to give anything away and (here I lied) I had POA and wanted the items back. Guy responds that H sounded sane to him.

I pushed on the matter and said I would be glad to sell them to him for a fair price, otherwise he could bring them back. H might not be using them, but we are going to send things to auction, as we need the money. He walked away but I stood my ground in his driveway. Seeing I wasn't leaving he then came back, and we negotiated a fair price for the table saw and scroll saw.

I was polite but also firm in the situation and I think he knew, from what I told his brother, I would legally pursue it. Now about the other things people took, some I don't even know who they were.

I was terrified to do that, but I figured I had nothing to lose, and I am going to have to do a lot more tough things as H continues his journey.

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