Ocular Migraine? Aura without headache?

Posted by esikora @esikora, May 24, 2023

Anyone else experience aura without headache? Please share. Thanks.

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

I see a few remedies and most are only stating what we all know, we had the first one, it scared us but resolved in a few minute to an hour and we have had them off and on for years afterwards with varying frequencies with little or no ill effects except the loss of vision. My question is with so many of us experiencing this (aura with no pain) why no effective way to deal with it??? All I see is dark, quiet, compresses, drink something (maybe caffeine?) and wait. I keep a diary and have failed to recognize any trigger. Maybe for me it is MSG but just a guess. I had thought sleep and stress but had one today and neither of those were issues for me but maybe it is latent??? HELP us figure this out. Thanks

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @pfrjr78 - interesting about the tablets and nasal spray to treat the onset of aura. Which ones did the neurologist prescribe?

What did your neurologist share about why they suggested a visit to the ER if the aura lasted more than 60 minutes and how the ER might intervene if this were the case?

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I suffer infrequent ocular migraines with headaches. As soon as I detect one coming on i.e. vision begins to blur/swirl, I drink a full glass of water. This stops it within a few minutes and all returns to normal. I learnt this remedy from a friend. hope it can help others

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I usually get the aura and other symptoms without the headache, though mine have pretty much stopped in my older age. I have only had a a headache with my aura symptoms a few times in my life, thankfully!

After the first few times I experienced aura, I got scared and saw an eye doctor. (Ophthalmologist, not Optometrist) and that doctor diagnosed me with migraine without aura.

Mine would seem to come out of nowhere at times, but other times, they started after bright light hitting my eyes, looking at certain patterns (like small houndstooth and certain striped patterns (black & white, dark blue& white), and even looking down onto a driveway that was covered in pink & white petals from a tree).

They would usually start as a sort of white area in my eyesight, usually on one side of an eye, then after a few seconds, the squiggly lines would appear and move around my field of vision. Sometimes it would remind me of a mirage, other times like a kaleidoscope. They would normally last anywhere from about 15 minutes to an hour or so.

I often also experienced smelling things that no one else could smell. Sometimes this would start before the aura, so after a while, if I started smelling someone odd, I would gear myself up for a coming aura. I smelled weird things, such as wet garden dirt, fruit loops, and cotton candy, and the scent was very strong. Sometimes the scent would disappear once the aura started, other times, I think I might have had auras with only the scents.

I would get nauseous, but not all the time.

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Profile picture for pfrjr78 @pfrjr78

Gave samples of tablets and sprays: Rimegepant and Zavegepant.
I had a very lengthy and informative first visit, thoroughly covering numerous items related to my over 60 yrs of headaches and including much about auras. She did not share why the ER visit nor ER treatment but asked considerable questions about nature, durations, etc. about my auras that i have been having over 15 yrs.

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Very concerning and unexpected bad news. After a very encouraging only visit with my Neurologist that I would get some help. Unfortunately after completing an MRI of the brain yesterday and lab work related to inflammation I learned today that she was leaving the office in less than a week. It's been a long time and another long wait I'm afraid

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Profile picture for pfrjr78 @pfrjr78

Hi, I was only responding to questions from Moderator Lisa Lucier . She asked, "Why they suggested a visit to the ER if the aura lasted more than 60 minutes and how the ER might intervene ". My visit with her was very lengthy, involving numerous aspects of my decades of headaches of which auras has been a very small part. It has only been in the last 15 yrs that I have experienced auras and in almost all of those years I was getting on average one in one to two years. So her comment about visiting an ER didn't raise much of a concern. It wasn't until Lisa asked those questions that I began to wonder. I really would not like to say at this point if I would or not recommend her because it was only my first visit, but I will never forget her caution. Hope things work out well for both of us and thank you for the post.

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Jokenly, relating to the terminology, "Headache", more than a decade ago my condition improved after years of headache pain as a result of two Radio Frequency Ablation treatments. When I told my now retired cherished Primary, Dr. Richard Weiss at that time that I no longer had a headache, as an ache I meant, just a lot of head pressure he chuckled telling that that's a headache. I recalled this when my new and current Neurologist reminded me saying something like, it's not pressure or pain it's just headache.

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Profile picture for thisfatoldlady @thisfatoldlady

I am very interested in the ER visits. My fluttering/auras go on for hours. Since there is no pain, and mostly just my peripheral vision is effected; I've never thought seriously about it. Maybe I should get that referral to a neurologist.

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Hi, I was only responding to questions from Moderator Lisa Lucier . She asked, "Why they suggested a visit to the ER if the aura lasted more than 60 minutes and how the ER might intervene ". My visit with her was very lengthy, involving numerous aspects of my decades of headaches of which auras has been a very small part. It has only been in the last 15 yrs that I have experienced auras and in almost all of those years I was getting on average one in one to two years. So her comment about visiting an ER didn't raise much of a concern. It wasn't until Lisa asked those questions that I began to wonder. I really would not like to say at this point if I would or not recommend her because it was only my first visit, but I will never forget her caution. Hope things work out well for both of us and thank you for the post.

REPLY

I am very interested in the ER visits. My fluttering/auras go on for hours. Since there is no pain, and mostly just my peripheral vision is effected; I've never thought seriously about it. Maybe I should get that referral to a neurologist.

REPLY

Gave samples of tablets and sprays: Rimegepant and Zavegepant.
I had a very lengthy and informative first visit, thoroughly covering numerous items related to my over 60 yrs of headaches and including much about auras. She did not share why the ER visit nor ER treatment but asked considerable questions about nature, durations, etc. about my auras that i have been having over 15 yrs.

REPLY
Profile picture for pfrjr78 @pfrjr78

Hi Lisa, Sorry I confused Glaucoma with my need of surgery for cataracts. From yesterday's visit with my Neurologist of most interest regarding auras was I received tablets and nasal spray to treat the onset of an aura. Of significance was I should go to the emergency room if the duration of an aura is 60 minutes.
She also remarked that triptans are not recommended for patients older than 65.

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Hi, @pfrjr78 - interesting about the tablets and nasal spray to treat the onset of aura. Which ones did the neurologist prescribe?

What did your neurologist share about why they suggested a visit to the ER if the aura lasted more than 60 minutes and how the ER might intervene if this were the case?

REPLY
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @pfrjr78 and @thisfatoldlady - in addition to this support group here on on headache and migraine, you might want to check out the Eye Conditions support group on Mayo Clinic Connect, as well https://connect.mayoclinic.org/group/eye-conditions/.

Examples of some discussions that might interest you include:

-After Cataract Surgery both eyes
https://connect.mayoclinic.org/discussion/after-cateract-surgery-both-eyes/
Was just diagnosed with glaucoma, need support!
https://connect.mayoclinic.org/discussion/was-just-diagnosed-with-glaucoma-need-support/
pfrjr78, not sure if you've completed your appointment with the neurologist just yet. If so, what did the neurologist say about your more frequent auras recently?

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Hi Lisa, Sorry I confused Glaucoma with my need of surgery for cataracts. From yesterday's visit with my Neurologist of most interest regarding auras was I received tablets and nasal spray to treat the onset of an aura. Of significance was I should go to the emergency room if the duration of an aura is 60 minutes.
She also remarked that triptans are not recommended for patients older than 65.

REPLY
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