@roseann4z
You could have made your (valid) point without the undertone of snark...The writer's intention was clearly to reassure sufferers that these spells are often harmless.
@esikora I am surprised you would react with such hostility. I was not being “snarky” I was relaying a very real and frightening experience that can affect someone who has these types of migraines. It is not a condition most people take so lightly. Especially if they are frequent, it can make it difficult to get around independently and even if they are harmless medically. I was genuinely saying the writer was fortunate. Perhaps you should reconsider your own interpretation of others.
I guess you can close your eyes & enjoy the show if you are not driving when these occur-which has happened to me and I had to pull over until it was over. Luckily I was not on the highway. Once that happens to you it’s a little more difficult to take this symptom so lightly. You are fortunate.
@roseann4z
You could have made your (valid) point without the undertone of snark...The writer's intention was clearly to reassure sufferers that these spells are often harmless.
I guess you can close your eyes & enjoy the show if you are not driving when these occur-which has happened to me and I had to pull over until it was over. Luckily I was not on the highway. Once that happens to you it’s a little more difficult to take this symptom so lightly. You are fortunate.
I started having absent/occular migraines when I was going through menopause. That was 28 years ago. I was working long hours on the computer doing Excel spreadsheets. That instance began with a backwards C in each eye. I was afraid I was having a stroke, but otherwise felt fine and needed to finish my work project. It lasted about a twenty minutes to a half hour. Eventually I was checked out by a neurologist who diagnosed me with absent/occular migraines. Over the years, Ive had times where I’d have them every other week or so but typically in just one eye. Other times I will go for years without having any. Rarely I do get a minor headache that doesn’t usually require taking any medicine to relieve it. Mine usually start in the center of one of my eyes and slowly move to the outer aspect of that eye until it fades from view. Visible when my eyes are closed. People have posted online of what their aura looks like and it’s interesting to see. Mine typically have moving light blue, black, white and yellow zigzagging moving lines. But not always those 4 colors together. I’ve found mine to be typically triggered by exposure to different types of bright light or being stressed. Now I track them on my calendar and just sit back, close my eyes and enjoy the light show!
@twilkens53 - Welcome to Mayo Clinic Connect. Your attitude of closing your eyes and enjoying the light show is a good example of accepting and enjoying life as it comes.
What did the neurologist you saw indicate about a connection between menopause and the absent/ocular migraines?
I started having absent/occular migraines when I was going through menopause. That was 28 years ago. I was working long hours on the computer doing Excel spreadsheets. That instance began with a backwards C in each eye. I was afraid I was having a stroke, but otherwise felt fine and needed to finish my work project. It lasted about a twenty minutes to a half hour. Eventually I was checked out by a neurologist who diagnosed me with absent/occular migraines. Over the years, Ive had times where I’d have them every other week or so but typically in just one eye. Other times I will go for years without having any. Rarely I do get a minor headache that doesn’t usually require taking any medicine to relieve it. Mine usually start in the center of one of my eyes and slowly move to the outer aspect of that eye until it fades from view. Visible when my eyes are closed. People have posted online of what their aura looks like and it’s interesting to see. Mine typically have moving light blue, black, white and yellow zigzagging moving lines. But not always those 4 colors together. I’ve found mine to be typically triggered by exposure to different types of bright light or being stressed. Now I track them on my calendar and just sit back, close my eyes and enjoy the light show!
Just thought I'd share with someone, just had a double migraine, well, I call it 'double', as in one after another! oh joy! I'm not concerned; had it once or twice before in the past 30 years hardly regular. Had the usual scinilating scatoma, flashing C shape which dispersed to the peripheral edge but, before it was complete, a second one occured ( a reverse C) and dispersed to opposite side. However, the total duration was the usual 30 minutes. No headache. My last one was 10 weeks ago, so hardly a regular occurance. Number 7 this year. Probably get another one or two before the years out.....can't wait!
They are very difficult I have been dealing with them for 5 years but the colours and patterns after are getting worse ,I have been to my GP the hospital ,paid to see a Neaurologist as o just want to know what the colours and patterns are don't seen to be able to get an answer ,just given an auto epileptic drug to take for migraine which I must say o am very worried about taking ,but I do want this to stop.
Hi I have ocular migraines ,and lots of patterns and colours after them for about a week ,does anyone else experience this crazy visual disturbance ,also just been given Topiramate Milpharm by my GP to take anyone taking this and is it OK?
Hello @honeysuckle4, and welcome to the Headache/Migraine support group on Mayo Connect.
It sounds like your visual disturbances, following your migraines, are difficult. How long have you been dealing with ocular migraines? Are these visual disturbances new to you?
Hi I have ocular migraines ,and lots of patterns and colours after them for about a week ,does anyone else experience this crazy visual disturbance ,also just been given Topiramate Milpharm by my GP to take anyone taking this and is it OK?
Hi I have ocular migraines ,and lots of patterns and colours after them for about a week ,does anyone else experience this crazy visual disturbance ,also just been given Topiramate Milpharm by my GP to take anyone taking this and is it OK?
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@esikora I am surprised you would react with such hostility. I was not being “snarky” I was relaying a very real and frightening experience that can affect someone who has these types of migraines. It is not a condition most people take so lightly. Especially if they are frequent, it can make it difficult to get around independently and even if they are harmless medically. I was genuinely saying the writer was fortunate. Perhaps you should reconsider your own interpretation of others.
@roseann4z
You could have made your (valid) point without the undertone of snark...The writer's intention was clearly to reassure sufferers that these spells are often harmless.
I guess you can close your eyes & enjoy the show if you are not driving when these occur-which has happened to me and I had to pull over until it was over. Luckily I was not on the highway. Once that happens to you it’s a little more difficult to take this symptom so lightly. You are fortunate.
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1 Reaction@twilkens53 - Welcome to Mayo Clinic Connect. Your attitude of closing your eyes and enjoying the light show is a good example of accepting and enjoying life as it comes.
What did the neurologist you saw indicate about a connection between menopause and the absent/ocular migraines?
I started having absent/occular migraines when I was going through menopause. That was 28 years ago. I was working long hours on the computer doing Excel spreadsheets. That instance began with a backwards C in each eye. I was afraid I was having a stroke, but otherwise felt fine and needed to finish my work project. It lasted about a twenty minutes to a half hour. Eventually I was checked out by a neurologist who diagnosed me with absent/occular migraines. Over the years, Ive had times where I’d have them every other week or so but typically in just one eye. Other times I will go for years without having any. Rarely I do get a minor headache that doesn’t usually require taking any medicine to relieve it. Mine usually start in the center of one of my eyes and slowly move to the outer aspect of that eye until it fades from view. Visible when my eyes are closed. People have posted online of what their aura looks like and it’s interesting to see. Mine typically have moving light blue, black, white and yellow zigzagging moving lines. But not always those 4 colors together. I’ve found mine to be typically triggered by exposure to different types of bright light or being stressed. Now I track them on my calendar and just sit back, close my eyes and enjoy the light show!
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Helpful -
Hug
1 ReactionJust thought I'd share with someone, just had a double migraine, well, I call it 'double', as in one after another! oh joy! I'm not concerned; had it once or twice before in the past 30 years hardly regular. Had the usual scinilating scatoma, flashing C shape which dispersed to the peripheral edge but, before it was complete, a second one occured ( a reverse C) and dispersed to opposite side. However, the total duration was the usual 30 minutes. No headache. My last one was 10 weeks ago, so hardly a regular occurance. Number 7 this year. Probably get another one or two before the years out.....can't wait!
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Hug
3 ReactionsThey are very difficult I have been dealing with them for 5 years but the colours and patterns after are getting worse ,I have been to my GP the hospital ,paid to see a Neaurologist as o just want to know what the colours and patterns are don't seen to be able to get an answer ,just given an auto epileptic drug to take for migraine which I must say o am very worried about taking ,but I do want this to stop.
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1 ReactionHello @honeysuckle4, and welcome to the Headache/Migraine support group on Mayo Connect.
It sounds like your visual disturbances, following your migraines, are difficult. How long have you been dealing with ocular migraines? Are these visual disturbances new to you?
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1 ReactionHi, @honeysuckle4. Welcome to Mayo Clinic Connect. Having a visual disturbance like that would be tough.
Here is some Mayo Clinic information on the drug topiramate that may be useful:
- Topiramate (oral route) https://www.mayoclinic.org/drugs-supplements/topiramate-oral-route/description/drg-20067047
Hoping that here in this discussion you can connect with other members talking about ocular migraines and that they will give you any thoughts on Topiramate Milpharm. Please meet @milliemae @esikora @californiazebra @lakesofdelray @lakelifelady @pacer3702 @lacy2.
With the patterns and colors after the ocular migraines for about a week, are you able to still get around and do things at all?
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2 ReactionsHi I have ocular migraines ,and lots of patterns and colours after them for about a week ,does anyone else experience this crazy visual disturbance ,also just been given Topiramate Milpharm by my GP to take anyone taking this and is it OK?
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Helpful -
Hug
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