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Ocular Migraine? Aura without headache?

Headache & Migraine | Last Active: Apr 21 8:05pm | Replies (128)

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Similar story. Severe migraine age 12, cont'd throughout life. Feb 2025 had been bent over, stood up & became VERY dizzy which progressed to nausea, light sensitivity to ill to move, very bp & taken by ambulance to ER; stayed overnight. Initially thought is was ear crystals out of place, vertigo. After several appts for heart, stroke, bp, mri's wwo dye, brain scans & meds that made me too sleepy to function; no longer taking. 1 ENT & 2 Nuerologist: ENT performed VNG = diagnosed 81% damage to left side of vestibular nerve. 2 nuerologists: The "auroa" is the migraine. Was given "rescue" migraine meds episodes of the aura. Don't take the daily meds. 6 months later still dizzy but not as bad, difficulty with visual/image convergence & images jumping. Turning head to a full left/right triggers major dizzy. PT rehab gave multiple exercises to retrain the brain to compensate for the damage. For me - the full left/right head turns are the ones that force brain to relearn/compensate. Was told to start slow allowing vision to catch up then gradually increase speed. The nuerologist also said you can have headaches "migrain storms aka electric shocks" that begin at the brain stem upward to the optical, the storms can also go under the brainstem. Many variations of the "storm" - silent migraines. Barometric pressure drop also triggers dizzy days. Hope this helps. See ENT for VNG testing.

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Replies to "Similar story. Severe migraine age 12, cont'd throughout life. Feb 2025 had been bent over, stood..."

Must have been so frightening. What did they say caused the damage to tbe vestibular nerve?