Any nutrition plans and meal recipes to slow down urge to go?

and i am getting the lanreotide acetate that helps but it stop working before the next shot i am not having any problems with it

A resource you may find helpful is Seena's Care Kitchen, a program from the Seena Magowitz Foundation. It was created specifically for pancreatic cancer patients and caregivers and offers easy-to-follow recipes, nutrition guidance, and cooking tips designed to address common challenges like poor appetite, taste changes, digestive issues, and treatment side effects

Beatie
Wishing you well with your search. I have carcinoid syndrome so I asked to work with a nutritionist, who learned alongside me, about nutrition to help with Carcinoid Syndrome Symptoms. Lanreotide helped and learning to balance the Lanreotide with the prescribed Creon also helped. I also take rescue Ochtreatide as needed especially at the end of the month.
In addition to a Carcinoid Syndrome Diet which worked for me we checked for Niacin Deficiency (Vitamin B3) learning about avoiding amine triggers and Diarrhea and Fat Malabsorption.
We worked on customized meal planning and maintaining. nutrient levels,
Carcinoid Cancer Foundation has a free booklet which was a good start and other nutrition resources.
https://www.ncf.net/nutrition-resources
Not easy but well worth the lessening of bathroom visits.. Hopefully, you will find some help.

@beatie62 Where are your NETs?

Thank You

@maeve115 Thanks for this link resource! I am on Octreotide for my NET's and have problems with bad constipation if I don't eat things like prunes, ground flaxseed on my oatmeal, and Miralax daily. Heavy fats (like KFC chicken or too many nuts) cause bad bloating, so I'm staying away. My bilirubin levels are always high on testing.....any connection?
I see some others have problems with diarrhea, the exact opposite. Very interesting. I'm looking for more ideas on preventing "slow gut motility" and bloating.
Thanks!

Jardinaera
Yes, Octreotide seems to work better if one has diarrhea from Carcinoid syndrome and needs to have less bathroom visits, it can be a real plus. However for those who do not deal with Carcinoid syndrome one needs a Doctor's assistance and/or a good nutritionist because it can slow down motility and bloating. In addition to the focus on dietary adjustments, meal timing, and close coordination with your physician to determine Miralax need and scheduling.
A nutritionist can help with adapting a diet to :
Eat small meals more often during the day up to five or six a day.
Modify fat intake
Avoid carbonated drinks
Reduce fat intake
A quick AI search states "Because octreotide chemically alters your entire digestive system, you must work closely with your healthcare provider rather than trying to override these symptoms entirely on your own. Your doctor can investigate and treat the precise underlying causes of your bloating"
Your Doctor might check if your constipation/poor motility is from the Ochtreatide, Sibo, Gall Bladder concerns, mechanical blockage or something else.
Sounds as if you are doing a remarkable job on your own, but I needed input and follow-up to find the right reason and the guidance to stick to the diet I needed. I know it is difficult to find the right nutritionist and a medical situation in which we get the help we need.. but you have already stated the problem and what you have done to try to correct it. Now, I hope you can find some assistance. I had to request a nutritionist. My oncologist did not suggest one. Sometimes a Primary can also assist in finding a solid nutritionist who works with your oncologist. Wishing you well, and am impressed that you have named the symptoms and already actively adapting your eating ..

Oops. I should have written Ochtreatide sometimes... Everyone is not the same, nor does Ochtreatide affect everyone the same.. "Sometimes".

@maeve115 Thank you so much for your reply and the extra information you've given me. I did get advice from a nutritionist early in my treatment with Octreotide in 2023, mainly to help me with the constipation it caused right away. I got the ideas of what type of foods might help and the Miralax. I discovered on my own that really fatty foods make me bloat and uncomfortable with a distended stomach.
I should really ask for another appointment with her to discuss further. I don't see my doctor except for every 4 months or so, just go in for the shots and blood tests. At no time has he discussed the causes of bloating and stomach distension.
I have another problem of labile hypertension, with a BP that goes up as the day goes on, especially high around dinner time. I have to carefully time my eating with how my BP is controlled by my meds, since "slow motility" of a meal can mean that if my BP meds are combined with a lot of food, they won't work for hours and I can go very high.
The wacky hypertension was caused by breast cancer drugs, and I'm now stuck with it. I'm off the drugs. Two cancer diagnoses at the same time is not fun but it's what is.
The two things you suggest I should do more of is have smaller meals more often and being vigilant about fat intake, especially saturated fat. Thanks, Maeve, for your ideas!

@jardinera25
I am no expert on these matters but I do suspect that many of us need to find our particular workarounds for the side effects. Ochtreatide is supposedly results in constipation in about ten to twenty percent of users. Seems as if you have found your semi-solution in avoiding fatty foods. I am glad that you are going to see the nutritionist again. I find it helpful to see the nutritionist on a regular basis to help with keeping on track.

Two cancer diagnoses at the same time has to be rough. I know from past personal experience that aromotase inhibitors, taken for post breast cancer surgery, were rough on the body. I also needed to stop taking them. Together we are learning to self advocate and determine what our bodies and spirits require.. Managing the dietary stuff is challenging and I am sorry that you also need to watch you BP so closely. Self monitoring can feel like a full time job. Some days, I just need to create a cancer-free days where I maintain my diet routine but put aside everything and find some rest, restoration and even a bit of delight.. May you feel a moment of delight find you today.