NSVT with hypertrophic cardiomyopathy

Sorry what is NSVT? V-Tach? SCD, I’m assuming, is standing for Sudden Cardiac Death.

Hi @liz7186, and WELCOME to Mayo Connect!
You have come to a great place to learn from others with your same condition. Mayo Connect is a place where we can openly share our concerns and experiences, and hopefully learn from each other too. We can't dispense medical advice or guess as to what certain test results may mean, so I hope you have an appointment with your cardiologist in the near future? You mention the NSVT (Non-sustained Supra-ventricular Tachycardia) was picked up recently on an event monitor, so I am just assuming that means you will have follow up. From my own experience, I had a variety of arrhythmias, of which SVT was one. The difference between the two is elusive, but I think it just means the SVT occurs and goes away very quickly, thus the "non-sustained". I can also testify that there were times before I had my septal myectomy I was afraid I would suddenly die! It's a real fear. So I do hope your cardiologist is up to date with HCM and HOCM and that you have confidence in them to guide you in the right direction and treatment. Do you have a follow-up appointment scheduled to go over the heart monitor?

Hi!
Thank you for your response, my cardiologist did call me and go over the results and I have also seen a rythm specialist and together he feels I do not need an icd. I’ve had a cardiac mri done as well and he states that with all of the results combined a icd is not needed.

Thank goodness for that! I have heard that some people who have had to have an ICD, can actually get PTSD if/when the device fires. It can be quite frightening, even though the little thing is keeping you alive.
Other than HCM, how is your health? Are you able to get out and enjoy life?

Hello! I was dx 6 mo ago with hocm. I also wore a heart monitor for 1 week. I had 2 events of nsvt during that time. Both were brief and only lasted 6- 11 beats. Due to these 2 events and also 1 syncope episode(a sudden collapse with no warning) I have been classed as a 2a candidate for an icd. I am currently deciding on if I will have one placed. When the Dr discovered my nsvt I was immediately placed on metrop at 25 mg per day. What info do they look at on cardiac mri to decide on icd placement ? I have my results from my cardiac mri and would like to look at that

They say my LGE is only 5% which isn’t too alarming. I’ve attached the impression from my mri.

Hello @newtosohcm, I believe NSVT is Nonsustained ventricular tachycardia and is a risk factor for exactly what you mentioned, sudden cardiac death. @liz7186, is this correct?

I have a diagnosed with both HOCM and NSVT. I underwent a Septal Myectomy at Mayo in 2022. Since then, I still am having NSVT. My cardiologist and surgon at Moyo discussed with me before the surgery but all concluded that I did not need a ICD. I am on a medication called disopyramide to help with the palutations. Hope this helps

Hello @parteeh, and a warm welcome to Mayo Connect. I am glad you are here and hope that you find connecting with others like you helps you learn about your own HCM diagnosis. There is a lot of information on here, so take some time and poke around if you have not already.
I had a septal myectomy at Mayo too, and had to be on beta/calcium channel blockers for about a year. My heart just really liked the 'fast lane' and going over the speed limit right after surgery. Like you, I was evaluated for an ICD right after surgery too, but they didn't feel it was necessary. I was put on beta blockers.
It took a while, and none of the four different medications liked me, and I did not like them either. I ended up working with Dr. Ommen through the patient portal and was able to just go off them last year. I feel so much better now. I no longer get weird, irregular heart beats and am able to do so many things I could not before surgery.
I hope you are able to get off the Disopyramide one day. How often do you check in with your cardiologist? Have you had any contact with Mayo Clinic through the patient portal? They are so wonderful 🙂

I have had my fire off 9 times and once 6 times in 30 minutes. Yes you do get PTSD but after a month I got over it.