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NOT BEING TREATED FOR MAC

Posted by cheb @cheb, Jun 12 7:53am

I have been coughing up yellow sputum since September 2025, when I had gotten sick with a cold. It is now June 2026 and I am STILL coughing up yellow sputum. I was recently diagnosed with MAC/Bronchiectasis in May 2026. I started using a nebulizer and the yellow sputum is less than I used to cough up, but it is still there. I have bouts of fatigue, nausea, occasional low fever (99) and lots of muscle and joint aches and pains. I had my 3rd lung CT about 2 weeks ago. Some of the nodules resolved and they said things looked 'stable'. I finally got in to see an infectious disease doctor and they do not want to treat me. They said 'wait and see'. I am shocked! I would understand the 'wait and see' theory, IF I was not having symptoms. But I am still coughing up yellow sputum, along with the other symptoms I mentioned. I am not looking forward to the antibiotics, but shouldn't I be treated if I'm still coughing up yellow sputum, feeling fatigue and nausea, and having lots of muscle and joint aches and pains?

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jondaniel71 | @jondaniel71 | Jun 28 7:16pm
In reply to @ursala7 "@pmgreen Hi, I am going to start the treatment for MAC in a few weeks, after..." + (show)
Profile picture for ursala7 @ursala7

@pmgreen Hi, I am going to start the treatment for MAC in a few weeks, after seeing an ID doc. I'll take the fatigue (I already have it anyway). In my case, I can't live with persistent pneumonia, which has been going on for 3 months. Just curious: Did you wait for 4 years due to a watch and wait protocol?

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@ursala7 I was diagnosed in 2018, just started Big 3 at the end of March. Virtually no symptoms until early this year.

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pmgreen | @pmgreen | Jun 28 7:21pm
In reply to @ursala7 "@pmgreen Hi, I am going to start the treatment for MAC in a few weeks, after..." + (show)
Profile picture for ursala7 @ursala7

@pmgreen Hi, I am going to start the treatment for MAC in a few weeks, after seeing an ID doc. I'll take the fatigue (I already have it anyway). In my case, I can't live with persistent pneumonia, which has been going on for 3 months. Just curious: Did you wait for 4 years due to a watch and wait protocol?

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@ursala7 yes, they hD identify two bacteria at first but this spring they said that one had disappeared and the one they are now treating is microbacteria a I'm complex. I have had a number of CT's and it showed significant growth. Hence ID dr said it was time for treatment. Good luck.

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pmgreen | @pmgreen | Jun 28 7:25pm
In reply to @ursala7 "@pmgreen Hi, I am going to start the treatment for MAC in a few weeks, after..." + (show)
Profile picture for ursala7 @ursala7

@pmgreen Hi, I am going to start the treatment for MAC in a few weeks, after seeing an ID doc. I'll take the fatigue (I already have it anyway). In my case, I can't live with persistent pneumonia, which has been going on for 3 months. Just curious: Did you wait for 4 years due to a watch and wait protocol?

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@ursala7. Sorry for typos
Microbacteria avium complex is what I have.

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