1. < Hypertrophic Cardiomyopathy (HCM)

Norpace`

Posted by jhoffmanj @jhoffmanj, Dec 23, 2016

Hello, Since Oct 10, 2016 and after being released from hospital, Dr. told me another ablation would likely not address my AFIB and put my on Norpace. I take 2 150 mg in morning and 2 150 at night. My heart beat is regular and my BP is good. However I have ever present bloating, gas and big time constipation. I also seemed to have less energy but that may be due to my heart condition. Anyone taking Norpace and are you having similar issues. Is there another drug I could take.

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debcrawford | @debcrawford | Dec 28, 2016

I also had bad constipation, they had me take stool softners but they didn't do anything!

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1 reply
jhoffmanj | @jhoffmanj | Dec 29, 2016
In reply to @debcrawford "I also had bad constipation, they had me take stool softners but they didn't do anything!" + (show)
@debcrawford

I also had bad constipation, they had me take stool softners but they didn't do anything!

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Thanks. What bothers me too is the constant feeling that I have my abdomen blown up like a volley ball.

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vivian88 | @vivian88 | Jan 2, 2017

I live in Taiwan where there is a lack of info on HCM and lack of medical resources for HCM patients. However, Taiwan has a medical center which leads the world in arrhythmia treatment, especially for Afib. So I underwent a trans catheter RF ablation procedure in Taiwan before I ventured out to Mayo for apical myectomy. I had both Afib and VT at that time, and my EP was able to take care of both in a 4 hr procedure. I have been taking anti arrhythmia drug called Multaq (Dronedarone) and beta blocker Concor (bisoprolol), plus anti coagulant Xarelto, even to now (15 months post apical myectomy). Since my ablation procedure 2 years ago, I have not been found to have recurrence of Afib or VT. I do not have an ICD implanted and have never been put on Norpace.
@jhoffmanj, sorry I don't know if I am being helpful to you at all. Perhaps you can ask your Dr. to change your medication to Multaq (which, from what I understand, also has side effects, but it works on me perfectly)

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 2, 2017

@vivian88 How wonderful that you were able to find good help! Thanks for sharing your story.

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jhoffmanj | @jhoffmanj | Jan 2, 2017
In reply to @vivian88 "I live in Taiwan where there is a lack of info on HCM and lack of..." + (show)
@vivian88

I live in Taiwan where there is a lack of info on HCM and lack of medical resources for HCM patients. However, Taiwan has a medical center which leads the world in arrhythmia treatment, especially for Afib. So I underwent a trans catheter RF ablation procedure in Taiwan before I ventured out to Mayo for apical myectomy. I had both Afib and VT at that time, and my EP was able to take care of both in a 4 hr procedure. I have been taking anti arrhythmia drug called Multaq (Dronedarone) and beta blocker Concor (bisoprolol), plus anti coagulant Xarelto, even to now (15 months post apical myectomy). Since my ablation procedure 2 years ago, I have not been found to have recurrence of Afib or VT. I do not have an ICD implanted and have never been put on Norpace.
@jhoffmanj, sorry I don't know if I am being helpful to you at all. Perhaps you can ask your Dr. to change your medication to Multaq (which, from what I understand, also has side effects, but it works on me perfectly)

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Thanks for your information. I appreciate it.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 16, 2017

@jhoffmanj Did you talk to your doctor about the bloating and distended stomach side effects. Did s/he suggest a solution or medication alternate?

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pfazenbaker | @pfazenbaker | May 11, 2017

I am 45 and I have HCM.i had a defribilator put in 3 years ago and just had open heart surgery to thin my heart in november.I have a stiff heart as well. I feel like my symptoms are getting worse and no better after surgery. I am constantly out of breath, i get lightheaded and dizzy, and blurred vision. Not as many pulptations but when i have them they are bad. Is this normal?? Is this how i will live out my life?? Im already on all the meds.. Please help?

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1 reply
Cynaburst, Alumna Mentor | @cynaburst | May 11, 2017

If you are not feeling better 6 months after surgery something is not right. Where did you have your surgery?

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5 replies
pfazenbaker | @pfazenbaker | May 11, 2017
In reply to @cynaburst "If you are not feeling better 6 months after surgery something is not right. Where did..." + (show)
@cynaburst

If you are not feeling better 6 months after surgery something is not right. Where did you have your surgery?

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I had my surgery done at UPMC in Pittsburge Pa.

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