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medic7054
@medic7054

Posts: 116
Joined: Mar 23, 2016

Non pain related personal discussions

Posted by @medic7054, Aug 25, 2017

I am strongly considering opting out of this forum. I, on average get 20-30 emails per day by people using this as their own personal “chat room. I thought this forum was for CHRONIC PAIN SUFFERERS discussing their pain issues and various treatments. Not talking about their darn DOG, among other non pain related. These people are giving me more pain.

REPLY

This is been discussed and one solution that was offered was for anybody wanting to just chat to start a subject in the chronic pain forum that was titled something like ‘Just wanting to connect for support’. I’m not sure if anyone’s done it though. I agree it’s too many emails.

Hello @medic7054,

I can understand how the emails can become overwhelming. As the community continues to grow, it means more members are joining and discussing, which naturally results in more notifications. However, every member on Connect finds support in different ways. Chronic pain can be isolating, as we all know. Please see the following message our Community Director, Colleen Young posted to the Chronic Pain group:

To all members of the Chronic Pain group

Several of you have posted about the issue of too many emails. The current system works well for low to moderately active groups, i.e., groups that get 1-20 messages a day or even more. But once a group crosses the threshold of 40+ messages, it is untenable, overwhelming and frustrating. We are developing a solution for the notification system to accommodate those groups on Connect that experience high volume. Find out more about managing your notifications here:

– [Tip] How to Update Your Notification Settings https://connect.mayoclinic.org/discussion/tip-how-to-update-your-notification-settings/

The Chronic Pain group has become a victim of its success. Like us, I’m sure that you’re glad that so many people have found this welcoming and informative community to talk and solve issues related to pain and pain management. This introduction thread, “Chronic Pain members – Welcome, please introduce yourself,” is a great place to connect with other members and to discover what issues you have in common. Unfortunately, as a community grows, the intro thread can get quite noisy.

We encourage people to start new discussion threads based on specific topics of interest and to connect with the people who share that interest. Or check the list of existing topics and join in: https://connect.mayoclinic.org/group/pain/

How to start a new discussion topic
1. Go to the Chronic Pain homepage https://connect.mayoclinic.org/group/pain/
2. Click START A DISCUSSION.
3. Write a title. Be concise, but describe what you want to talk about.
4. Write your message. (You can even @mention other members you would like to have join the discussion.)
5. CREATE DISCUSSION.

Find out more about How to get started on Connect: https://connect.mayoclinic.org/get-started-on-connect/

Justin, thanks so much for creating the “Non pain related personal discussions” thread! I really appreciate it! There’s no way you can know in advance what sorts of discussions will occur on this forum, so you can’t create discussion topics until someone lets you know that they might be needed. Thanks for being so responsive! It’s really easy to start a new discussion, and I hope that people will take advantage of this feature. Simply complaining and not asking for or suggesting a solution doesn’t get anyone anywhere, except peeved.

Personally, I love hearing about people’s pets and personal matters. We’re brought together here because we all have chronic pain, but there’s a lot more going on in our lives than just that. I think we need to celebrate the fact that, despite our physical difficulties, we do have reasons to be happy to be alive.

Thanks again!

Hazel (@hazelblumberg)

I’m not sure who actually started this topic, but thank you. I agree it should slow down the general introduction Chronic Pain subject thread, and give people a place to get to know each other better.

Hi Hazel, now everyone can talk about our furry friends who help support many of us each day. Wish we could post pics of each of our pets, but I can’t figure out how.
Happy chatting, Jennifer

@jenapower

I’m not sure who actually started this topic, but thank you. I agree it should slow down the general introduction Chronic Pain subject thread, and give people a place to get to know each other better.

Hi Hazel, now everyone can talk about our furry friends who help support many of us each day. Wish we could post pics of each of our pets, but I can’t figure out how.
Happy chatting, Jennifer

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@jenapower,

You have to go to the website to add media, you can’t do it by replying by email. Click on VIEW & REPLY on the bottom of your notification, and then when you are on the site, there should be an Add Media icon above where you are typing. You can insert an image from there. Let me know if you need further help, I can certainly give a more detailed description!

@jenapower

I’m not sure who actually started this topic, but thank you. I agree it should slow down the general introduction Chronic Pain subject thread, and give people a place to get to know each other better.

Hi Hazel, now everyone can talk about our furry friends who help support many of us each day. Wish we could post pics of each of our pets, but I can’t figure out how.
Happy chatting, Jennifer

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Thanks for the tip Justin.

Hazel, here’s my baby girl Millie

IMG_2706

@jenapower

I’m not sure who actually started this topic, but thank you. I agree it should slow down the general introduction Chronic Pain subject thread, and give people a place to get to know each other better.

Hi Hazel, now everyone can talk about our furry friends who help support many of us each day. Wish we could post pics of each of our pets, but I can’t figure out how.
Happy chatting, Jennifer

Jump to this post

Jennifer, I really need to take pictures of my furry guys and girls: 10 cats and 2 dogs, all rescues, all seniors, and most with special needs. They mean so much to me, they entertain me, they love me unconditionally, and I love them just as much.

Hazel (@hazelblumberg)

@jenapower

I’m not sure who actually started this topic, but thank you. I agree it should slow down the general introduction Chronic Pain subject thread, and give people a place to get to know each other better.

Hi Hazel, now everyone can talk about our furry friends who help support many of us each day. Wish we could post pics of each of our pets, but I can’t figure out how.
Happy chatting, Jennifer

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THAT is one absolutely adorable dog!!!!!!!!!!!!! How old is Millie?

Hazel

This is suppose to be about chronic pain.

I, too have complained to the moderator with negative results. I am NOT interested in reading about someone’s darn dog, cat, grand children or ANY other comments NOT related to “chronic pain”. I an not interested in hearing anecdotal references to uncle Georges problems with his gallbladder either. I will be cancelling what USED TO BE a very helpful forum.

@jenapower

I’m not sure who actually started this topic, but thank you. I agree it should slow down the general introduction Chronic Pain subject thread, and give people a place to get to know each other better.

Hi Hazel, now everyone can talk about our furry friends who help support many of us each day. Wish we could post pics of each of our pets, but I can’t figure out how.
Happy chatting, Jennifer

Jump to this post

As of today I am sick and tired seeing this forum turned into an informal chat room to discuss pets, uncles or hubby’s prostate problems. I don’t need to see pictures of peoples pets or grandchildren either. This is supposed to be about chronic pain ONLY.

I’ve actually spoken to the moderators. If you look up the name of this is a thread it was started by one of the moderators so that people could get it off the “introduce yourself, chronic pain thread”. If you don’t this kind of conversation you on turn off/unsubscribe to this thread and stay on the other pain threads. The point was that many people that are in pain are isolated, and having someone to talk to eases the pain and their day. I think the moderators were trying to come up with the way to solve this by starting just a talking thread/subject.

Maybe one of the moderators can come out here and explain how to shut off this subject so you don’t have these email and you can stay on the subject you do want. This was started simply to have a place to connect for those what wanted it. You don’t have to be on this thread or read any of the information.

I’ve been on the pain threads, put out questions and information about pain and the anything that I could do to help. I answered this one because it was started for that purpose. I’m sorry it upset you so much but just turn it off. Jennifer

@medic7054

I, too have complained to the moderator with negative results. I am NOT interested in reading about someone’s darn dog, cat, grand children or ANY other comments NOT related to “chronic pain”. I an not interested in hearing anecdotal references to uncle Georges problems with his gallbladder either. I will be cancelling what USED TO BE a very helpful forum.

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Turn off this subject, it was intended for anyone to say anything

@medic7054

I, too have complained to the moderator with negative results. I am NOT interested in reading about someone’s darn dog, cat, grand children or ANY other comments NOT related to “chronic pain”. I an not interested in hearing anecdotal references to uncle Georges problems with his gallbladder either. I will be cancelling what USED TO BE a very helpful forum.

Jump to this post

Turn this subject off

Then another thread should start for lonely people and pets. This thread has been for people who have chronic pain and suffering. We are also feeling alone with our pain. But I don’t want to hear about pets. This is about people. Make a lonely people column. I am alone with my pain. Do you think my husband or my family really understands having pain every day and trying to live a normal life as possible? Or going out to dinner with friends and sneaking a pain pill into your mouth with out anyone noticing it? Or everyone is having a drink and a good time and you are faking it? This is what this column is about. I feel my pain, no one else can feel it unless they have been through the same thing. My back hurts. I can’t even go to one store to look for underwear with out feeling like my back is cracking. When I’m in pain I get overwhelmed and afraid that this time it will not go away. I want to, and am planning on a 4 day trip where we have to fly, and I am afraid that the pain is going to ruin the one vacation I have had in a long time. How much can I put my family through? I have 8 other brothers and sisters. 6 of them won’t talk to me because they think I am faking it or using it as an excuse to get out of things until one day I got so mad at them I told them that they could all go to hell.
THESE ARE THINGS I ALWAYS WANTED TO TELL THE CONNECT GROUP BUT DIDN’T BECAUSE I DID NOT WANT TO HOG THE GROUP, I WANTED FEEDBACK ON MY PAIN AND NOW I SHOULD JUST DELETE THE EMAIL? I DON’T THINK SO. THE LONELY PEOPLE SHOULD START THEIR OWN BLOG.
Marield65

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