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grand4
@grand4

Posts: 2
Joined: Sep 10, 2018

Non hodgkins lymphoma spleen

Posted by @grand4, Thu, Oct 4 2:58pm

Diagnosis of b cell non hodgkins splenic lymphoma . Treatment: 4 weekly treatments of ritixan. Has anyone had their spleen removed when diagnosised?

REPLY

Hello @grand4. I would like to invite @maisyann, @mepowers, @ladygolfder18, and @dougmann who also have experience taking rituxan (rituximab). @dougmann also has some experience with spleen pain.

@grand4, if you don't mind me sharing, was removing your spleen discussed with you as a potential treatment?

My diagnosis was CNS Lymphoma. I had no spleen issues. In fact, Rituxin was the easiest part of my treatment. I felt like the Rituxin brought clarity to my brain whether is was that or the Chemo made my brain foggy, I don’t know. No bad experiences with Rituxin. Best of luck @grand4!

I was diagnosed with splenic marginal zone small b cell lymphoma in April of 2017. The Doctors at Mayo Rochester removed my enlarged spleen July 2017. In September 2017 I had another bone marrow biopsy and flow cytometry and the lyphoma was still in the bone marrow. In October I started 4 weeks of Rituxan. Had no side effects to the Rituxan. After the Rituxan the lymphoma is now gone but I still have night sweats and fatigue . I am now on wait and watch until the end of January next year.

@JustinMcClanahan

Hello @grand4. I would like to invite @maisyann, @mepowers, @ladygolfder18, and @dougmann who also have experience taking rituxan (rituximab). @dougmann also has some experience with spleen pain.

@grand4, if you don't mind me sharing, was removing your spleen discussed with you as a potential treatment?

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Yes, It was discussed, however the doctor was totally NOT for removal of the spleen.

I have just been diagnosed with a Splenic cyst and an enlarged spleen and liver. Awaiting results of CT scan next week with interest to see if my Indolent Follicular Lymphoma is back. I was originally diagnosed in August 2000. Relapsed with an extra nodal tumour on my scalp in March 2012.

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