Have nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?

Hi @thelmathomas76
I have reduced the dosage of some epilepsy medication, but always with my doctor's orientation and supervision. Do not do it by yourself!
Chris (@santosha)

@thelmathomas76
Seizures are more common after hemorrhagic strokes, compared to ischemic strokes. Why do you believe they are psychogenic verses abnormal electrical induced seizures (epilepsy?)
Do you know what is causing them?
If you're going to discontinue any seizure medication, discontinue it slowly just in case it is epilepsy. If you do have epilepsy, discontinuing seizure, medication's too quickly can cause a very dangerous seizure activity known as status epilepticus, which requires immediate medical intervention. Always better to air on the side of caution.
Best wishes to you.
Take care,
Jake

My neurological "team" have deemed my "episodes" as "anxiety and depression based" so I dont think from that diagnosis that I have epilelipsy But Im very confuses since I have had different doctors say different things. I feel like a guinea pig with me changing dosages

I have a Dr on board, he knows how Im supposed to do it gradually . I just wanted to know if others were doing it the same way with the same drug and having some similar symptoms. All my Dr said was " everyone is different"

@thelmathomas76
Your doctor is somehow right, people can have different reactions. As I am a person very sensitive to medications, my doctor at that time when I switched from Vimpat to Medical Cannabis did it very carefully and slowly so as not to increase my seizures as well as not increase the side-effects of Vimpat as medical cannabis potentializes the AEDs (anti-convulsants).
I can also imagine how confused you are with doctors of the same team saying different things. I would check for a second opinion if I were in such a situation.
Wishing you all the best at this Keppra drop-off!
Chris (@santosha)

Thank you for your input. It is always good to know what others are having so we dont feel alone. I was on a 3 day

EEG wire up and no seizure then, that was why they said mine was all from anxiety. The only episodes that were tracked were when I was in the hospital with a UTI that as going septic before they figured what was wrong with me.

@thelmathomas76
Just because a person has a normal EEG doesn't mean they don't have epilepsy. It's sad how often seizures are diagnosed as Psychogenic because of a normal EEG. Since you have started taking seizure medication's are your seizures under control or do they happen less often than they did?
Doctors are not always right.
Take care,
Jake

What @jakedduck1 has mentioned about EEG is very true, unfortunately. When you are doing this exam, there might be no electrical activity in the brain indicating epilepsy. I have lived with epilepsy without knowing it for over 30 years. I did several EEGs and doctors said they were all normal. According to what an epileptologist once told me, the best diagnosis of epilepsy is done through conversations with the patient, what he or she feels and what the symptoms are during and after the seizure. When in 2018, my seizures started to increase, I also had some doctors saying it was depression and anxiety. But finally, in 2019, I got the correct diagnosis of epilepsy.
All the best to you!
Chris (@santosha)

I was born premature at 25 weeks born with epilepsy. Been on keppra for 23 years but my neurologist says that I have non epileptic seizures along with a second neurologist’s opinion which said I have PNES seizures and took me off my seizure medication but my primary care doctor put me back on my seizure medication and it has been helping with my seizures, during my seizure my eyes are open and roll back into my head but my MRI CTSCAN VIDEO EEG LAB WORK comes back normal along with everything coming back normal I have a neurological condition called neurofibromatosis type 1 and MRI of the brain come back normal then in march I had a partial hysterectomy but still having seizures every now and then but my aura is elevated heart rate before the seizure but during the seizure heart rate is normal along with oxygen level but my blood pressure goes up also I have Mitral valve prolapse. I’m just wondering on what to do next cause neurologist wants to take me off the liquid keppra by slowly decreasing.

@meagan Good Morning
In situations where I feel uncomfortable with a doctor's approach, I usually seek a second opinion. Regarding PNEs, I cannot add much, as my knowledge in that area is limited. However, I recently came across an article that might be helpful for you:
https://www.myepilepsyteam.com/resources/epilepsy-and-stress-related-seizures/
Wishing you all the best!
Chris (@santosha)