No erection after 5 years after radical prostatectomy
I chose not to do the Davinci radical prostatectomy surgery but instead went with a well known urologist that insisted tactile was important during a nerve sparring radical prostatectomy. It's been 5 years as of January 2, 2020 and still not able to get an erection without a shot. Has anyone else had this experience?
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@lesjanes I forgot to add, most importantly my PSA has been undectable. My next visit for my 2 year I will be a little anxious, like I am with waiting for all test results.
But being cancer free is more important than sex. And I am thankful for that.
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1 Reaction@tomf 5 months out and have made some progress with ED. But no functional erections unless I use trimix. Personally I am very grateful for my wife and fhe orgasms I experience when not fully erect. In some ways better than prior to surgery. My mindset is best when I am grateful. I believe my erections will return as well.
@lesjanes
The problem is that when they take out the prostate, they connect the urethra back together without the prostate in the middle, and you lose the length of your penis for some of that lost urethra length.
You’re not gonna be able to get that back, Doctors claim it’s only about half an inch, I suspected to Depends on how large your prostate is.
You can get a penis pump to try to get back to as long as you can possibly get. They work well to get length back, but it’s probably not quite as long as you were before.
You can use injections like trimix, in your penis, to get an erection that will allow to have relations. They also have implants you can get that will give you an erection by pressing a button. What you pick to use depends on what your problem is in the long run. Are you able to get an erection without needing any of these solutions?
Thanks for the suggestions. I can usuallly get a "soft" erection. More or less erect but not firm enough for penetration. Except today we were able to get penetration, but penis length made it slightly awkward.
I have tried a penis pump a couple of times, but I don't feel I have the process right.
I have my next Uro visit in August. If PSA numbers are ok (more important than penis length), I will discuss length, Trivix, recovery process....etc. i am not interested in the pump.
This is utterly depressing. The common, dominate and underlying theme, is that OUR UROLOGISTS DECEIVE US BY NOT SHARING THE PROBABILITY OF PERMANENT ERECTILE DISFUNCTION FOR THE REST OF OUR LIVES. I am so utterly angry how my doctor has strung me along. I've written this before, so sorry for those re-reading it, but I asked: "How long until I can have an erection and enjoy sex again?" He said that it could take up to 6-9 months, but some men are lucky and achieve erections sooner. By my ninth month follow up and "NOT EVEN A TWITCH" DOWN THERE, I asked/said: "I thought you said 6-9 months?" He said that it can take some men a year, occasionally longer. At one year - and still no erections - I asked/said: "WELL?!?!?" He said, you might take maybe up to two years before you regain the ability to have an erection." I said: "That is still speaking in the affirmative that IT WILL HAPPEN, but it just take me longer." He only smiled with an uncomfortable look on his face. I think he already knows that despite his surgical report stating that he "preserved the neurovascular bundles", that few if any men ever regain their ability to get an erection. I think they know that if they tell us of permanent ED, that they would not get to make money off of us for performing the RP surgery. They are professional physicians...they should be man enough to tell us the bad news so that we can make our best, informed decision as to whether we have the RP surgery or not.
This has affected the rest of my life. I WILL NOT attempt to start dating someone new until I know I can get erections. BTW - my divorce was finalized one month before my RP surgery, so at age 70, I am starting my life all over again, but now I am incapable of being the full man that any woman will want. Yes, yes, yes...most women at my age are not so interested in sex any longer, but my intent is to find one that IS interested. I really never thought at all about how much the ability to have sex on command was important and defined me as a man...probably because I always could. I feel like "half a man" now. What woman will want a divorced, 70 year old man who can't have sex, and whose cancer has a great likelihood of returning within the first five years post-RP? My chances are less than 1% of finding someone for a lasting relationship.
I am literally sitting here shaking my head in disbelief and disgust thinking that I would have NEVER thought that I would be "HERE" in this situation. I am going to be one of those lonely old men who sits with other lonely old men out in front of the donut shop talking about our Glory Days. But wait...I am Diabetic, so I can't eat donuts. I guess I'll just sit alone in my house every morning wondering if it is my last morning on earth. Right now my big thrill everyday is to walk out to get the mail, go to buy a few groceries to see other human beings, and watch TV movies in the evening with my dogs on my lap. Then I wake up at 1:00 a.m. realizing that I fell asleep on the couch, so I go to bed, and do it all again the next day. I also go to the gym to see other humans...that is fun now since all of the college girls are home for the Summer!
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3 Reactions@rlpostrp
Get an implant.
First use A penis pump to get it working again. This is a recommendation from a urologist that specializes in ED.
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1 Reaction@rlpostrp - sounds like you’re going through a lot, and I do remember you posting about this before.
One thing I missed or don’t remember…how long since your surgery? Have you passed the outer limit of erection recovery?
My surgeon told me “2 to 4 years,” so he didn’t string me along like yours did. I just checked a few resources online and see that as long as 5 years isn’t out of the question, so depending when you had your surgery, all is not lost, you just may need to give it more time.
In the meantime, are you practicing penile rehab by using a pump and taking meds? That improves your chances quite a bit.
I had partial nerve-sparing (and the surgeon said I had some pretty funky, twisted up nerves, so it took him a lot longer to get them out) - nerves gone on my left, but still there on my right. That improves my chances, but not as much as if I’d had total nerve-sparing surgery, and I probably lose a point or two because I had a somewhat rough surgery.
I’m a little on the younger side (59 until next month), so that works in my favor, and while I was just starting to see the beginnings of ED before my surgery, I could still get an erection very easily (just some slight trouble maintaining it), so that might help, but I have HBP and flirt with diabetes now and again, both which contribute to ED.
All that means that I put my chances of getting back to unassisted erections after 4 years at around 45%. That’s my rough guess. I assume whatever I do get back will need to be helped along with meds. We’ll see.
I’m just biding my time until then. I’m married, wife is very understanding, and it’s important to remember that there’s more ways to have sex than just “Penis, meet Vagina…Vagina, Penis.” - you don’t really have to put off sex if you don’t want to.
You’ve been around longer than me, so you know better than I do that there’s oral sex, that there’s penetrative sex with sex aids, with your fingers, there are vibrators…you’ve got a whole menu to choose from, and it’s not all just for her, because you don’t need an erection to have an orgasm. It’ll take a little longer, and you need a willing and patient partner, but it can be done.
Meet someone you like and just be honest. Say what you’re going through. Look for companionship first and sex later if need be, but you don’t have to cut yourself off from women (or anyone else) if you don’t want to.
Who knows? Once you’re at a certain point, the little fellow may wake back up. There are plenty of men posting on here who’ve gotten on the other side of ED, I think. It’s not a certain death sentence.
Hang in there, work that pump, pop that pill, and try and remember you’re alive to live and f…ight another day, with a little luck and some persistence.
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1 Reaction@turtbean
Getting an implant is really a great way to get an erection whenever you want. They are very popular almost 90% satisfaction with people that have gotten them.
Really take a look into this you may find that that is the answer to your problems.
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1 ReactionTotally valid vent. And this is the place to do it.
However...... the reason we're all here is because we're not among the 700+ men a year who die from this.
You're on the right side of the dirt.
Big picture.
I'm nearly 2 years post-prostatectomy & still bothered by incontinence & ED.
In terms of what the surgeon told you, the best even the most gifted surgeon can tell anyone is "It varies".
We're not clones & we're not robots.
Not giving you a definitive answer is not being uncaring - it's being honest.
We're all different & we all have different outcomes.
Some guys here are continent from the day the catheter is removed. Some resolve erection issues within months.
Most of us don't.
As Jeff said (been here for ages & a real wealth of knowledge) look into a penile implant. I haven't got one, but I'll certainly be asking next time I see my urologist.
It's not "normal". but nothing is normal when you just cheated death by cancer.
I know everything sucks right now, but it's not over.
In the meantime, try a vacuum pump - even if it's just to keep the tissue alive until a better solution turns up.
Keep venting. The emotional impact of this isn't talked about enough.
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2 Reactions@rlpostrp Your situation is one of the reasons why I provide this list of questions for anyone planning a prostatectomy who doesn’t know what questions to ask:
Do you recommend surgery for me based on the results of my tests/scans? Why?
If yes, what type of surgery are you recommending? Can you explain what that will involve?
How many of this type of surgery have you done successfully (hundreds/thousands)? (“Successfully” means treated the disease and maintained quality of life.)
Will lymph nodes and/or seminal vesicles be removed? How will that affect me?
Will you be able to completely spare my nerve bundles? What can I expect if they can’t be spared?
—> Do you specialize in nerve-sparing surgery?
What are the potential complications of the surgery?
Will I have difficulty controlling my bladder or bowel function after treatment? If so, for how long? Will any of the effects be permanent?
—> Do you specialize in retzius-sparing surgery?
Will this treatment affect my sex life? If so, how and for how long? Will any of the effects be permanent?
What are other possible short-term and long-term side-effects of having this surgery?
Will I be required to use hormone suppression as part of the treatment plan? If so for how long? What are the side-effects? Are they short-term, long-term or permanent?
How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
How long will I have to be off of work?
How will treatment affect my emotional well-being?
How high is the risk of metastasis and how quickly is that likely to happen?
What type of treatment would I have if the cancer returns?
How will I know if it returns?
How long will the operation take?
How long would I be in the hospital?
Can you describe what my recovery from surgery will be like?
Are there any other tests or scans that I should have done before I make a decision?
How quickly do I need to make a decision?
Is there anything that I didn’t ask that I should know?
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3 Reactions