Njh visit

Posted by msk @msk, Apr 2, 2023

Hello
I am currently at njh. Great place, glad i came. Have had all kinds of test. Wondering if any of you had a positive sweat test and high anti nuclear score. Have paid for the gene testing for cystic fibrosis. It takes a few weeks for the results. I was shocked to have high levels. Doctor says all the autoimmune test are not back yet but so far they have been normal. Don’t understand why my number is so high. I leave tomorrow after some swallowing test. I had neck cancer so for me this is appropriate.
Any thoughts would be helpful.
Miriam

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Ok, thank you Rick. That actually works for me.

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@rstel7272

3-4 months, you would be lucky to get anything earlier

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Have you or any family member been to NJH?

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How do you start the process to get an appointment?

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@squire123

How do you start the process to get an appointment?

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You can do a self-referral or have your current Dr do a referral which I think might work best.
However, make sure NJH is in-network, NJH is very expensive.

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@dlynn1210

Have you or any family member been to NJH?

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After 2 years of insurance denials, I finally got in last August. In my case, after many tests, they have not uncovered anything new or changed my treatment other than wanting to do lobectomy which refers me back to my current hospital.

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@dlynn1210

Have you or any family member been to NJH?

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I just got back and it was well worth the visit!

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@rstel7272

After 2 years of insurance denials, I finally got in last August. In my case, after many tests, they have not uncovered anything new or changed my treatment other than wanting to do lobectomy which refers me back to my current hospital.

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What are you being treated for - lung cancer?

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@tconz

I just got back and it was well worth the visit!

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I have not been to NJH but seriously considering it now. I continue to see it talked about here and then my pulmonologist asked me if I was considering going to Mayo. I told him I tried to get an appt but they didn’t accept our insurance. He said the best hospital was in CO and I asked if it was NJH (that I see mentioned here frequently). He replied “Yes”. So I am very seriously considering going there.

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@dlynn1210

What are you being treated for - lung cancer?

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No, I had recent PET and bronchosopy each negative. Was treated for MAC, now fungal infection.

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I had tonsil cancer 12-13 years ago so wondering about your high numbers and what they mean.

Diana

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