Newly diagnosed and scared

Posted by melb06 @melb06, Dec 6, 2024

Hi. I just got a diagnosis of MAC after almost a year of testing. I have asthma controlled by inhaled steroids and no other symptoms. A cavitary granuloma was found incidentally when having a chest xray last jan. A needle biopsy ruled out malignancy so i had a follow up CT scan 6 months later to see that the granuloma doubled in size. Still no symptoms. Did a bronchoscopy to see if there is an infectious cause and just got the MAC diagnosis. The pulmonologist referred me to an ID specialist who wants me on the antibiotic regimen despite being asymptomatic because its a cavitary lesion. Can those of you who have been or are on this daily regimen tell me about the side effects. They sound potentially terrible. Its the vision and/or hearing loss that scares me the most. Anyone experience either of these things?
Sorry for the long post, but i am relieved to find this forum and appreciate any input and experiences you can share to hopefully calm my nerves.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@lorrie48

Thank you. I'm still learning how to say bronchiecstasis. 😀
Is there a difference between MAC and MAI?

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My limited understanding is that MAC refers to the multiple types of infections that fall under the big umbrella of MAC.
The MAI designates the particular infection under the big umbrella of MAC. C meaning Complex.
NJH has a video that has been posted on one of the threads on this Mayo Clinic Connect about it all. It is a talk Dr. Daily from NJH gives. I think it is under a tread of treating MAC.
Barbara

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