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Newly diagnosed
Hi. I was diagnosed with MAC and bronchiectasis in July. I just saw ID and have 3 more weeks before starting treatment. I'm delighted I found this group. I have spent the last 2 months with Dr Google and it did nothing but raise more concern.
My symptoms are chronic cough with occasional blood, constant throat clearing, weight loss, heavy chest and an indescribable feeling in my trachea from the inflammation.
Did anyone else have a long wait period before starting treatment? I'm actually ok with it. But 2+ months seems like a longtime to go without support.
Again, I'm glad I found this group. I have found it very helpful from an anticipatory perspective.
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@sueinmn, Funny I had just watched that video a few days earlier when I was looking for answers. Thanks for your response, you have been a tremendous help to me learning about this disease in the last year or two.
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1 Reaction@picartist I was diagnosed at 80 with BE and 81 with MAI at NJH.
With the help of Sue and Irene 8 I finally made up my mind to not do the antibiotics.
I have a low load of MAI and feel well. The main problem for me is the constant need, due to what comes up to my throat, to clear the phlegm out.
So far the MAI has stayed at a low load. I do what we are told to do with having BE and an infection. So far so good.
My Pulmonary Function Tests and the last CT Scan have been good or improved (CT Scan). The problem is, can I keep it that way, hope so.
Barbara
I went two months without treatment .I wanted a second opinion before I started and needed my medicines in liquid form as I have Sjögren's swallowing difficulties .These problems this took time to organise .
Started the 3 antibiotics Three weeks ago …OK so far
@farfalina
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