Mayo Clinic Connect
My name is Michael. I am 44 years old. I have been blessed with receiving 2 heart transplants at Mayo Clinic Jacksonville. I am glad to meet everyone.
Liked by Colleen Young, Connect Director, salena54
Hi Michael @bsox1901). Welcome to Connect! We are so glad to have you. Wow, what a story. Can you tell our community a little more about yourself and your health journey? How is life post-transplant?
I’m tagging @spoiledblurose74 who received a heart transplant back in 2012 in hopes that you two can connect and support each other. I’m also tagging @linda59, @rosemarya and @magrand48 who have transplant experiences and may be able to share stories and insights.
Also, I just wanted to let you know I’ve changed the title of your thread to make it more searchable and hopefully get it more activity.
Liked by Michaelb
Yes i am comfortable sharing everything. Do i just share via a reply? Kinda new to this.
Hi @bsox1901. Yes, you can just reply and your comment will post just below the other comments.
Hello everyone, Let me start by saying im honored to share my story. I was born on January 22, 1972 in Pensacola Florida. Twenty-Six i was diagnosed with Dilated Cardiomyopathy. Eight years later i would have my first transplant at Mayo Clinic Jacksonville. I was very fortunate to have great family support. My transplant was complicated by acute renal failure. Coming up on year 6 post transplant. I was told my heart was dying. I would need another transplant. I developed Coronary Artery Disease. A condition they would call Post Transplant Vasculopathy. On 1/10/2012 I would have my second heart transplant. I suffered a mild heart attack when a blood clot got stuck in my ventilator tubbing. I also suffered a stroke that affected my short term memory and vision. I will end this by saying that I am very fortunate to have great Doctors and Nurses. I hope that was not to long. Thank you.
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Dear Friends,Thankx Soo much for this! I look forward to connecting more tomorrow. XL
Liked by JeanS, Michaelb
Michael, thank you for sharing your inspiring experience. You have been thru a lot already in your life. I am 67 and just celebrated my 7th transplant anniversary for my liver/kidney.
I, too, transplanted at Mayo (Rochester). We who have been fortunate to receive a life saving organ transplant are truly blessed. The medical team at Mayo, and the loving gift of life from our donors, have given us a new life and a new outlook. And we will always be thankful.
I hope you are doing well. Rosemary
Liked by Colleen Young, Connect Director, Michaelb
Dear Friends,Thank you so much for sharing … You give me hope!!Thank you Soo much. Linda
Rosemary, Thank you , and yes i am doing great. I was very sad at first. I was no longer the body God created. I have since realized that I am the body he saved. Both of my heart donors sole purpose in life was to save my life. We will never meet on earth. Maybe one day in Heaven.
Linda, Hope is a beautiful word! I learned that if you take care of yourself, and hold on to hope, that your difficult journey will be a little more bearable. I’m glad if I was some help. Rosemary.
I have (somewhere) a prayer/poem that I will share with you.
I can relate to the emotions thing. It has taken me some time to sort out all of what I went thru. Got to go for now.
Our young son had a heart transplant two years ago. Sadly he had Giant Cell Myocarditis … A rare, aggressive disease that destroyed his own heart. The transplant has gone very well except the disease came back in his wonderful donors heart! I had been living on the edge of life since! The anxiety was practically unbearable, except for Gods strength! There is some confusion as to how best treat now as there is no evidence base to advise the way forward. Suffice to say his condition is being managed,,,the last treatment being a chemo drug for chronic leukaemia! Thank God it has worked and he has been well since. I was living with soo much uncertainty I couldn’t function.My fear was ‘ could he survive another transplant if he needed/ could have one? You have both answered my question. Especially Michael, bless you. God is good…his wonders to perform…We only know and experience so little here but when the Kingdom comes there will be know more tears or suffering.Meanwhile we simply need to know we are loved and perfect love casts out all fear!Take care, dear friends and once again thank you for sharing a part of your journey with me. Safe uncertainty and Trust in God is getting me through alongside my two new friends!
Linda i will pray for your son. Transplant patients live on the edge of the abyss. Never truly knowing what tomorrow might bring.
Would love to hear it.
We shall be praying for you too
@bsox1901, I would like to add my welcome. So glad that you connected with @linda59 and @rosemarya here. Your discussion will be welcome by others seeking support for heart transplant. You may also be interested in following some of the discussions in the Heart & Blood Health group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/ For example:
– Dilated Cardiomyopathy https://connect.mayoclinic.org/discussion/dilated-cardiomyuopathy-meds/
– Coronary Artery Disease https://connect.mayoclinic.org/discussion/im-a-46-year-old-female-who-had-recently-been-diagnosed-with/
Michael, what care must you take now to keep you and your heart healthy? How is your short-term memory now?
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