New to the site and to transplants (liver)

Posted by sky86 @sky86, Oct 30 6:28pm

Hello everyone!

So I just joined Mayo Connect, even though we are not at the Mayo Clinic. I hope that is OK. My fiancee goes Monday to start the examination process to get on the liver transplant waiting list. I'm a little nervous and trying not to get overwhelmed. He has hepatic encephalopathy and does not do well in communicating with doctors and hospital staff so it's up to me to get the low down on everything. And to make sure that he follows everything afterwards.

I guess, my question is this...is there anything I should prepare for? Any questions I should ask the staff to make sure he gets the best care?

Thanks everyone! I look forward to talking and encouraging you all.

Interested in more discussions like this? Go to the Transplants Support Group.

amandagulley90 | @amandagulley90 | 6 days ago

Just wanted to let everybody know that Timothy Cooper passed away November 14th at 7:01 p.m.

craigcraig | @craigcraig | 6 days ago

In reply to @amandagulley90 "Just wanted to let everybody know that Timothy Cooper passed away November 14th at 7:01 p.m." + (show)

@amandagulley90 I am so very sorry for your loss. My prayers are out to you and all who knew and loved Timothy. Take care during this difficult time. Best wishes.

Rosemary, Volunteer Mentor | @rosemarya | 6 days ago

In reply to @amandagulley90 "Just wanted to let everybody know that Timothy Cooper passed away November 14th at 7:01 p.m." + (show)

@amandagulley90
I am sorry to read of the passing of Tim. Please accept my condolence and know that I am thinking of you during this difficult time.
I hope you can find comfort in knowing that you honored him by caring for him supporting him during his final days. ❤️

Ginger, Volunteer Mentor | @gingerw | 6 days ago

In reply to @amandagulley90 "Just wanted to let everybody know that Timothy Cooper passed away November 14th at 7:01 p.m." + (show)

@amandagulley90 My sincere condolences to you, and Tim's family and other friends in his life.
How are you doing today?
Ginger

amandagulley90 | @amandagulley90 | 2 days ago

In reply to @gingerw "@amandagulley90 My sincere condolences to you, and Tim's family and other friends in his life. How..." + (show)

@gingerw honestly I am lost and to make matters worse now I have to be out of the place that me and Tim shared by December the 10th with nowhere to go and don't know what I want to do