New to PMR

Posted by lcrquestions @lcrquestions, 5 days ago

I am new to this, so apologies if I am not using this forum correctly. Diagnosed last week with PMR by my GP, diagnosis confirmed by blood work. Taking 15 mg Prednisone daily since Tuesday. Unable to get an appointment to see a rheumatologist until September (aaaagh), so feeling beyond anxious. Questions: 1) Should symptoms be completely gone before considering a start to slowly tapering off? 2) If I still have some pain (in the morning), does that mean my dose is too low? 3) Is some pain only in the morning typical? Any info will be greatly appreciated!!! L.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

lcrquestions | @lcrquestions | 2 days ago

In reply to @lindaadele "I try to take one day at a time. Each of us is unique . wishing..." + (show)

Thank you for your kind words! L.

lcrquestions | @lcrquestions | 2 days ago

In reply to @lindaadele "I try to take one day at a time. Each of us is unique . wishing..." + (show)

To everyone who has responded to me ... thank you for your suggestions, support, and, most of all, encouragement!!! L.

pmrsuzie | @pmrsuzie | 6 hours ago

More specifics about a journal. Right now I'm using a 2025-2026 monthly/weekly planner. It's a decent size and each day has ample room for notations. Things like pred dose, blood pressure, Dr appts, anything you might want to refer back to later on. It has pages for notes and contacts. I take it with me to Dr visits in case I need to refer back to something while I'm there. Places like Wal-Mart, bookstores have a decent amount of choices so I shop around to find one that suits my needs best.

jsteck | @jsteck | 3 hours ago

I hate that you “joined our club” but I am glad you found the forum. I was diagnosed about four months ago and have been on 10mg of prednisone ever since. I am keeping track of things I think might be affect my pain levels. I thought maybe barometric pressure dropping was a cause of flare ups, but today and yesterday we are experiencing high pressure and I am not doing well. I am watching diet (recording what I eat) by trying to adhere to a Mediterranean diet as much as possible. I am exercising (rucking) when I can. The doctor started me on Methotrexate a few weeks ago along with Folic Acid. I agree with our the rest of our club that PMR is unique to each one of us in ways. I wish the best for you. Please keep us posted and keep asking questions. The shared answers help us all!