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New to Oxygen Supplementation - Questions
Greetings!
I'm a fellow bronchiectasis survivor. Seemingly impossible, a prior dance with MAC was successfully treated with a PICC line cocktail that included rifampin & three other meds. Did ok for few years, then began to again decline. Just finished a 30 treatment of inhaled (BID) gentamicin (as BCBS declined tobramycin). Just finished a week ago; seems ok rt. now. My oxygen SAT varies daily from 94 down to 85 at lowest, so oxygen supplementation has been prescribed. Does anyone know if one might get away with using a portable oxygen concentrator day and night until a big home unit could be purchased? My prescription's written to be the same for day and night. My coverage is terrible and think buying may be better in the long run than the co-pays, but purchasing all in one-hit is a lot.
So sorry others also have this miserable, miserable disease. Positive energy to all!
Signed,
Sick but Fashionable 🙂
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They never did a nocturnal test on me. But I do notice that I can turn my O2 way down when I go to sleep.
Some people just need it with activity. My mom’s saturation was fine at rest, but would drop quickly with any activity.
I’ve been on supplemental oxygen since my last bought of Covid. I also have BE and MAC.
I can get by not using it if I’m not too active (I’m an artist so sitting in my studio, just around house), but walking or any other physical at. I have the smallest personal unit and also the large one I use with my CPAP at night. I don’t like it, but it certainly allows me to do more.